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13 p, 587.1 KB |
Post-authorisation safety study of burosumab use in paediatric, adolescent and adult patients with X-linked hypophosphataemia : rationale and description
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Brandi, Maria Luisa (FIRMO Foundation (Itàlia)) ;
Ariceta Iraola, Gema (Hospital Universitari Vall d'Hebron) ;
Beck-Nielsen, Signe (Aarhus University Hospital (Aarhus, Dinamarca)) ;
Boot, Annemieke (University of Groningen) ;
Briot, Karine (Université de Paris) ;
de Lucas-Collantes, Carmen (Universidad Autónoma de Madrid) ;
Emma, Francesco (Bambino Gesù Children's Hospital IRCCS (Itàlia)) ;
Giannini, Sandro (University of Padua) ;
Haffner, Dieter (Children's Hospital (Alemanya)) ;
Keen, Richard (Royal National Orthopaedic Hospital NHS Trust (Regne Unit)) ;
Levtchenko, Elena (University Hospitals Leuven) ;
Mӓkitie, Outi (Helsinki University Hospital) ;
Nilsson, Ola (Karolinska Institutet and University Hospital) ;
Schnabel, Dirk (Charitè, University Medicine) ;
Tripto-Shkolnik, Liana (Tel-Aviv University) ;
Zillikens, M. Carola (Department of Internal Medicine, Erasmus MC Bone Center - Erasmus University Medical Center, Rotterdam (Holanda)) ;
Liu, Jonathan (Kyowa Kirin International (Regne Unit)) ;
Tudor, Alina (Kyowa Kirin International (Regne Unit)) ;
Mughal, M. Zulf (Royal Manchester Children's Hospital) ;
Universitat Autònoma de Barcelona
X-linked hypophosphataemia (XLH) is a rare, inherited, phosphate-wasting disorder that elevates fibroblast growth factor 23 (FGF23), causing renal phosphate-wasting and impaired active vitamin D (1,25(OH)D) synthesis. [...]
2022 -  10.1177/20406223221117471
Therapeutic Advances in Chronic Disease, Vol. 13 (september 2022)
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The key actor : A qualitative study of patient participation in the handover process in Europe
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Flink, Maria (Department of Social Work. Karolinska University Hospital) ;
Hesselink, Gijs (Radboud University Medical Centre. Scientific Institute for Quality of Healthcare) ;
Pijnenborg, Loes (Department on Quality and Safety. St. Antonius Hospital) ;
Wollersheim, Hub (Scientific Institute for Quality of Healthcare (IQ Healthcare). Radboud University Nijmegen Medical Centre) ;
Vernooij-Dassen, Myrra (Radboud University Medical Centre) ;
Dudzik-Urbaniak, Ewa (National Center for Quality Assessment in Health Care) ;
Orrego, Carola (Universitat Autònoma de Barcelona. Institut Universitari Avedis Donabedian) ;
Toccafondi, Giulio (Clinical Risk Management and Patient Safety Centre) ;
Schoonhoven, Lisette (Faculty of Health Sciences. University of Southampton) ;
Gademan, Petra J. (Primary Health Care, Utrecht Area) ;
Johnson, Julie K. (Centre for Clinical Governance Research. University of New South Wales) ;
Oḧlén, Gunnar (Quality and Patient Safety. Karolinska University Hospital) ;
Hansagi, Helen (Karolinska Institutet (Estocolm, Suècia). Department of Clinical Neuroscience) ;
Olsson, Mariann (Department of Social Work. Karolinska University Hospital) ;
Barach, Paul (Department of Health Studies. University of Stavanger)
Background: Patient safety experts have postulated that increasing patient participation in communications during patient handovers will improve the quality of patient transitions, and that this may reduce hospital readmissions. [...]
2012 - 10.1136/bmjqs-2012-001171
BMJ Quality and Safety, Vol. 21 Núm. SUPPL. 1 (december 2012)
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5 p, 448.0 KB |
Quality indicators for patient safety in primary care. A review and Delphi-survey by the LINNEAUS collaboration on patient safety in primary care
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Frigola-Capell, Eva (Universitat Autònoma de Barcelona. Institut Universitari Avedis Donabedian) ;
Pareja Rossell, Clara (Institut Català de la Salut) ;
Gens Barber, Montse (Institut Català de la Salut) ;
Oliva Oliva, Glòria (Generalitat de Catalunya. Departament de Salut) ;
Alava Cano, Fernando (Generalitat de Catalunya. Departament de Salut) ;
Wensing, Michel (Radboud University Nijmegen Medical Centre. Scientific Institute for Quality of Healthcare) ;
Davins Miralles, Josep (Generalitat de Catalunya. Departament de Salut)
Background: Quality indicators are measured aspects of healthcare, reflecting the performance of a healthcare provider or healthcare system. They have a crucial role in programmes to assess and improve healthcare. [...]
2015 - 10.3109/13814788.2015.1043730
The European Journal of General Practice, Vol. 21 (14 2015) , p. 31-34
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12 p, 1.1 MB |
Deepening our Understanding of Quality in Australia (DUQuA) : a study protocol for a nationwide, multilevel analysis of relationships between hospital quality management systems and patient factors
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Taylor, Natalie (Macquarie Universit. Australian Institute of Health Innovation) ;
Clay-Williams, Robyn (Australian Institute of Health Innovation) ;
Hogden, Emily (Australian Institute of Health Innovation) ;
Pye, Victoria (Australian Institute of Health Innovation) ;
Li, Zhicheng (Australian Institute of Health Innovation) ;
Groene, Oliver (London School of Hygiene & Tropical Medicine) ;
Suñol Sala, Rosa (Universitat Autònoma de Barcelona. Institut Universitari Avedis Donabedian) ;
Braithwaite, Jeffrey (Australian Institute of Health Innovation)
Despite the growing body of research on quality and safety in healthcare, there is little evidence of the association between the way hospitals are organised for quality and patient factors, limiting our understanding of how to effect large-scale change. [...]
2015 - 10.1136/bmjopen-2015-010349
BMJ open, Vol. 5 (december 2015)
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11 p, 793.9 KB |
The international X-linked hypophosphataemia (XLH) registry (NCT03193476) : rationale for and description of an international, observational study
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Padidela, Raja (University of Manchester) ;
Nilsson, Ola (Örebro University) ;
Makitie, Outi (Helsinki University Hospital (Finlàndia)) ;
Beck-Nielsen, Signe (Aarhus University Hospital (Aarhus, Dinamarca)) ;
Ariceta Iraola, Gema (Hospital Universitari Vall d'Hebron) ;
Schnabel, Dirk (University Medicine Berlin) ;
Brandi, Maria Luisa (University of Florence) ;
Boot, Annemieke (University of Groningen) ;
Levtchenko, Elena (University Hospitals Leuven (Bèlgica)) ;
Smyth, Michael (Kyowa Kirin International) ;
Jandhyala, Ravi (Medialis Ltd (Regne Unit)) ;
Mughal, Zulf (University of Manchester)
X-linked hypophosphataemia (XLH) is a rare, hereditary, progressive and lifelong phosphate wasting disorder characterised by pathological elevations in fibroblast growth factor (FGF) 23 concentration and activity; XLH has an incidence of approximately 1 in 20-25,000 individuals. [...]
2020 - 10.1186/s13023-020-01434-4
Orphanet Journal of Rare Diseases, Vol. 15 (june 2020)
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8 p, 365.5 KB |
Low-value care practice in headache : a Spanish mixed methods research study
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Pozo-Rosich, Patricia (Hospital Universitari Vall d'Hebron. Institut de Recerca) ;
Layos-Romero, Almudena (Complejo Hospitalario Universitario de Albacete) ;
Martin-Delgado, Jimmy (ATENEA research group (Alacant)) ;
Pascual Gómez, Julio (Universidad de Cantabria) ;
Bailón-Santamaría, Cristina (Hospital Universitario Marqués de Valdecilla (Santander, Cantabria)) ;
Tentor, Ana (Barrio del Pilar Health Center (Madrid)) ;
Santiago, Alejandro (Hospital Universitario Infanta Leonor) ;
Ignacio, Emilio (Cádiz University) ;
Torrés, Antonio (Patient Safety Observatory, Andalusian Healthcare Quality Agency, Seville, Spain) ;
Mira, José Joaquín (Universitat Miguel Hernández) ;
Universitat Autònoma de Barcelona
Headache is one of the most prevalent diseases. The Global Burden of Disease Study ranks it as the seventh most common disease overall and the second largest neurological cause of disability in the world. [...]
2020 - 10.1186/s10194-020-01147-w
Journal of headache and pain, Vol. 21 (june 2020)
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19 p, 773.1 KB |
Patient Safety Culture in European Hospitals : A Comparative Mixed Methods Study
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Granel, Nina (Universitat Autònoma de Barcelona. Departament d'Infermeria) ;
Palmieri, Patrick A (South American Center for Qualitative Research, Universidad Norbert Wiener) ;
Watson-Badia, Carolina Eva (Hospital Universitari Vall d'Hebron) ;
Gomez Ibañez, Rebeca (Universitat Autònoma de Barcelona. Departament d'Infermeria) ;
Leyva-Moral, Juan M (Universitat Autònoma de Barcelona. Departament d'Infermeria) ;
Bernabeu Tamayo, Maria Dolores (Universitat Autònoma de Barcelona. Departament d'Infermeria)
Background: Poorly organized health systems with inadequate leadership limit the development of the robust safety cultures capable of preventing consequential adverse events. Although safety culture has been studied in hospitals worldwide, the relationship between clinician perceptions about patient safety and their actual clinical practices has received little attention. [...]
2022 - 10.3390/ijerph19020939
International journal of environmental research and public health, Vol. 19 (january 2022)
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