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Resultats globals: 3 registres trobats en 0.03 segons.
Articles, 3 registres trobats
Articles 3 registres trobats  
1.
10 p, 768.8 KB BOMET-QoL-10 questionnaire for breast cancer patients with bone metastasis : the prospective MABOMET GEICAM study / Barnadas i Molins, Agustí (Institut d'Investigació Biomèdica Sant Pau) ; Muñoz, M. (Hospital Clínic i Provincial de Barcelona) ; Margelí, Mireia (Institut Germans Trias i Pujol. Hospital Universitari Germans Trias i Pujol) ; Chacón, J.I. (Hospital Virgen de la Salud (Toledo)) ; Cassinello, J. (Hospital General de Guadalajara) ; Antolin, S. (Complejo Hospitalario U. A Coruña) ; Adrover, Encarna (Complejo Hospitalario Universitario de Albacete) ; Ramos, M. (Centro Oncológico de Galicia) ; Carrasco, E. (GEICAM (Spanish Breast Cancer Group)) ; Jimeno, M.A. (GEICAM (Spanish Breast Cancer Group)) ; Ojeda, Belén (Hospital de la Santa Creu i Sant Pau (Barcelona, Catalunya)) ; González, X. (Hospital General de Catalunya) ; González, S. (Hospital Mutua de Terrassa. Barcelona) ; Constenla, M. (Complejo Hospitalario De Pontevedra) ; Florián, J. (Hospital Comarcal de Barbastro) ; Miguel, A. (Hospital Althaia Manresa) ; Llombart, A. (Hospital Arnau de Vilanova (València)) ; Lluch, Ana (Hospital Clínic Universitari (València)) ; Ruiz-Borrego, M. (Hospital Universitario Virgen del Rocío (Sevilla, Andalusia)) ; Colomer, R. (Hospital Universitario de la Princesa (Madrid)) ; Del Barco, S. (Hospital Universitari de Girona Doctor Josep Trueta) ; Universitat Autònoma de Barcelona
Bone metastasis (BM) is the most common site of disease in metastatic breast cancer (MBC) patients. BM impacts health-related quality of life (HRQoL). We tested prospectively the psychometric properties of the Bone Metastasis Quality of Life (BOMET-QoL-10) measure on MBC patients with BM. [...]
2019 - 10.1186/s41687-019-0161-y
Journal of Patient-Reported Outcomes, Vol. 3 Núm. 1 (january 2019) , p. 72  
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2.
10 p, 1.7 MB Assessing the Relationship of Patient Reported Outcome Measures With Functional Status in Dysferlinopathy : A Rasch Analysis Approach / Mayhew, Anna G. (The John Walton Muscular Dystrophy Research Centre. Translational and Clinical Research Institute. Newcastle University and Newcastle Hospitals NHS Foundation Trust) ; James, Meredith K. (The John Walton Muscular Dystrophy Research Centre. Translational and Clinical Research Institute. Newcastle University and Newcastle Hospitals NHS Foundation Trust) ; Moore, Ursula (The John Walton Muscular Dystrophy Research Centre. Translational and Clinical Research Institute. Newcastle University and Newcastle Hospitals NHS Foundation Trust) ; Sutherland, Helen (The John Walton Muscular Dystrophy Research Centre. Translational and Clinical Research Institute. Newcastle University and Newcastle Hospitals NHS Foundation Trust) ; Jacobs, Marni (Pediatrics. Epidemiology and Biostatistics. George Washington University) ; Feng, Jia (Center for Translational Science. Division of Biostatistics and Study Methodology. Children's National Health System) ; Lowes, Linda Pax (The Abigail Wexner Research Institute at Nationwide Children's Hospital) ; Alfano, Lindsay N. (The Abigail Wexner Research Institute at Nationwide Children's Hospital) ; Muni Lofra, Robert (The John Walton Muscular Dystrophy Research Centre. Translational and Clinical Research Institute. Newcastle University and Newcastle Hospitals NHS Foundation Trust) ; Rufibach, Laura E. (The Jain Foundation) ; Rose, Kristy (The Children's Hospital at Westmead. The University of Sydney) ; Duong, Tina (Lucile Salter Packard Children's Hospital at Stanford. Neurology) ; Bello, Luca (Department of Neuroscience. University of Padova) ; Pedrosa-Hernández, Irene (Hospital de la Santa Creu i Sant Pau (Barcelona, Catalunya)) ; Holsten, S. (Neuroscience Institute. Carolinas Neuromuscular/ALS-MDA Center. Carolinas HealthCare System) ; Sakamoto, C. (Department of Physical Rehabilitation. National Center Hospital. National Center of Neurology and Psychiatry Tokyo) ; Canal, Aurélie (Institut de Myologie. AP-HP. GH Pitié-Salpêtrière) ; Sánchez-Aguilera Práxedes, N. (Hospital Universitario Virgen del Rocío (Sevilla, Andalusia)) ; Thiele, S. (Department of Neurology. Friedrich-Baur-Institute. Ludwig-Maximilians-University of Munich) ; Siener, C. (Department of Neurology. Washington University School of Medicine) ; Vandevelde, B. (Service des Maladies Neuromusculaire et de la SLA. Hôpital de La Timone) ; DeWolf, Brittney (Cooperative International Neuromuscular Research Group. Children's National Health System) ; Maron, E. (ELAN-PHYSIO. Praxis für Physiotherapie Maron) ; Gordish-Dressman, H. (Pediatrics. Epidemiology and Biostatistics. George Washington University) ; Hilsden, H. (The John Walton Muscular Dystrophy Research Centre. Translational and Clinical Research Institute. Newcastle University and Newcastle Hospitals NHS Foundation Trust) ; Guglieri, M. (The John Walton Muscular Dystrophy Research Centre. Translational and Clinical Research Institute. Newcastle University and Newcastle Hospitals NHS Foundation Trust) ; Hogrel, J.Y. (Institut de Myologie. AP-HP. GH Pitié-Salpêtrière) ; Blamire, Andrew (Magnetic Resonance Centre. Institute for Cellular Medicine. Newcastle University) ; Carlier, Pierre G. (Pitié-Salpêtrière University Hospital) ; Spuler, S. (Charite Muscle Research Unit. Experimental and Clinical Research Center. A Joint Cooperation of the Charité Medical Faculty and the Max Delbrück Center for Molecular Medicine) ; Day, John W. (Stanford University School of Medicine) ; Jones, K.J. (The Children's Hospital at Westmead. The University of Sydney) ; Bharucha-Goebel, Diana (National Institutes of Health (Bethesda, Estats Units d'Amèrica)) ; Salort-Campana, E. (Service des Maladies Neuromusculaire et de la SLA. Hôpital de La Timone) ; Pestronk, Alan (Washington University School of Medicine) ; Walter, M.C. (Department of Neurology. Friedrich-Baur-Institute. Ludwig-Maximilians-University of Munich) ; Paradas, C. (Instituto de Biomedicina de Sevilla) ; Stojkovic, T. (Institut de Myologie. AP-HP. GH Pitié-Salpêtrière) ; Mori-Yoshimura, Madoka (National Center of Neurology and Psychiatry Tokyo) ; Bravver, Elena (Neuroscience Institute. Carolinas Neuromuscular/ALS-MDA Center. Carolinas HealthCare System) ; Diaz-Manera, Jordi (Institut d'Investigació Biomèdica Sant Pau) ; Pegoraro, Elena (University of Padova) ; Mendell, J. R. (The Abigail Wexner Research Institute at Nationwide Children's Hospital) ; Jain COS Consortium, None (The Abigail Wexner Research Institute at Nationwide Children's Hospital) ; Straub, V. (The John Walton Muscular Dystrophy Research Centre. Translational and Clinical Research Institute. Newcastle University and Newcastle Hospitals NHS Foundation Trust)
Dysferlinopathy is a muscular dystrophy with a highly variable functional disease progression in which the relationship of function to some patient reported outcome measures (PROMs) has not been previously reported. [...]
2022 - 10.3389/fneur.2022.828525
Frontiers in neurology, Vol. 13 (october 2022) , p. 828525  
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3.
12 p, 716.2 KB National quality assessment systems in the Nordic countries : developing a balance between external and internal needs? / Smeby, Jens-Christian ; Stensaker, Bjørn
The article compares national quality assessment systems of higher education in Finland, Denmark, Sweden and Norway. The intention is to study whether there is a balance between internal institutional and external societal needs in the design and organisation of quality assessment systems. [...]
1999
Higher education policy, vol. 12 n. 1 (1999) p. 3-14  
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