1.
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16 p, 1.0 MB |
Impact of treatment adherence and inhalation technique on asthma outcomes of pediatric patients : a longitudinal study
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Lizano-Barrantes, Catalina (Institut Hospital del Mar d'Investigacions Mèdiques) ;
Garin, Olatz (Institut Hospital del Mar d'Investigacions Mèdiques) ;
Mayoral, K. (Imperial College London) ;
Dima, Alexandra L. (Institut de Recerca Sant Joan de Déu) ;
Pont, Angels (Institut Hospital del Mar d'Investigacions Mèdiques) ;
Caballero-Rabasco, M. Araceli (Hospital del Mar (Barcelona, Catalunya)) ;
Praena-Crespo, Manuel (Grupo de Vías Respiratorias de la Asociación Española de Pediatras de Atención Primaria) ;
Valdesoiro-Navarrete, Laura (Parc Taulí Hospital Universitari. Institut d'Investigació i Innovació Parc Taulí (I3PT)) ;
Guerra, Maria Teresa (Centro de Salud Jerez Sur) ;
Bercedo-Sanz, Alberto (Centro de Salud Los Castros) ;
Ferrer Forés, Maria Montserrat (Institut Hospital del Mar d'Investigacions Mèdiques) ;
Universitat Autònoma de Barcelona
Introduction: We aimed to evaluate the longitudinal relationships, both at between- and within-person levels, that adherence to inhaled corticosteroid-based maintenance treatment and inhalation technique present with symptom control, exacerbations, and health-related quality of life (HRQoL) in children and adolescents with asthma. [...]
2024 - 10.3389/fphar.2024.1340255
Frontiers in Pharmacology, Vol. 15 (march 2024)
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2.
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9 p, 780.5 KB |
Flank pain has a significant adverse impact on quality of life in ADPKD : the CYSTic-QoL study
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Winterbottom, J. (Sheffield Teaching Hospitals Nhs Foundation Trust) ;
Simms, R.J. (Sheffield Teaching Hospitals Nhs Foundation Trust) ;
Caroli, A. (Istituto di Ricerche Farmacologiche Mario Negri Irccs) ;
Cornec-Le Gall, Emilie (Brest University) ;
Demoulin, Nathalie (Université Catholique de Louvain Medical School) ;
Furlano, Monica (Institut d'Investigació Biomèdica Sant Pau) ;
Meijer, E. (University Medical Centre Groningen) ;
Devuyst, Olivier (Université Catholique de Louvain Medical School) ;
Gansevoort, R.T. (University Medical Centre Groningen) ;
Le-Meur, Y. (Brest University) ;
Perico, N. (Istituto di Ricerche Farmacologiche Mario Negri Irccs) ;
Torra Balcells, Roser (Institut d'Investigació Biomèdica Sant Pau) ;
Ong, A.C.M. (Sheffield Teaching Hospitals Nhs Foundation Trust) ;
Universitat Autònoma de Barcelona
Background: Autosomal dominant polycystic kidney disease (ADPKD) is the most common inherited kidney disorder and a major cause of kidney failure worldwide. However, its impact on quality-of-life has not been systematically explored. [...]
2022 - 10.1093/ckj/sfac144
Clinical Kidney Journal, Vol. 15 Núm. 11 (january 2022) , p. 2063-2071
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3.
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6 p, 688.3 KB |
Do Patients and Physicians Agree When They Assess Quality of Life?
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Barata, Anna (Hospital de la Santa Creu i Sant Pau (Barcelona, Catalunya)) ;
Martino Bofarull, Rodrigo (Institut d'Investigació Biomèdica Sant Pau) ;
Gich, Ignasi (Institut d'Investigació Biomèdica Sant Pau) ;
Garcia Cadenas, Irene (Institut d'Investigació Biomèdica Sant Pau) ;
Abella Monreal, Eugenia (Hospital del Mar (Barcelona, Catalunya)) ;
Barba, Pere (Hospital Universitari Vall d'Hebron) ;
Briones Meijide, Javier (Institut d'Investigació Biomèdica Sant Pau) ;
Brunet, Salut (Hospital de la Santa Creu i Sant Pau (Barcelona, Catalunya)) ;
Esquirol, Albert (Institut d'Investigació Biomèdica Sant Pau) ;
García-Pallarols, Francesc (Hospital del Mar (Barcelona, Catalunya)) ;
Garrido, Ana (Hospital de la Santa Creu i Sant Pau (Barcelona, Catalunya)) ;
Granell, Miguel (Institut d'Investigació Biomèdica Sant Pau) ;
Martinez, Jaume (Hospital Universitari Vall d'Hebron) ;
Mensa, Irene (Hospital Universitari Vall d'Hebron) ;
Novelli, Silvana (Hospital de la Santa Creu i Sant Pau (Barcelona, Catalunya)) ;
Sánchez-González, Blanca (Hospital del Mar (Barcelona, Catalunya)) ;
Valcárcel, David (Hospital Universitari Vall d'Hebron) ;
Malouf Sierra, Jorge 1971- (Institut d'Investigació Biomèdica Sant Pau) ;
Universitat Autònoma de Barcelona
Patient and physician agreement on the most significant symptoms is associated with treatment outcomes and satisfaction with care. Thus, we sought to assess patient and physician agreement on patient-reported quality of life (QoL), and whether patient-related variables predict disagreement. [...]
2017 - 10.1016/j.bbmt.2017.03.015
Biology of blood and marrow transplantation, Vol. 23 Núm. 6 (june 2017) , p. 1005-1010
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4.
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5 p, 286.6 KB |
The Efficacy of the proprioceptive neuromuscular facilitation (PNF) approach in stroke rehabilitation to improve basic activities of daily living and quality of life : A systematic review and meta-analysis protocol
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Guiu-Tula, Francesc Xavier (Universitat Ramon Llull) ;
Cabanas-Valdés, Rosa (Universitat Internacional de Catalunya) ;
Sitjà-Rabert, Mercè (Universitat Ramon Llull) ;
Urrútia, Gerard (Institut d'Investigació Biomèdica Sant Pau) ;
Gómara-Toldrà, Natàlia (Universitat de Vic) ;
Universitat Autònoma de Barcelona
Proprioceptive neuromuscular facilitation (PNF) is a widely used rehabilitation concept, although its efficacy has not yet been demonstrated in stroke survivors. The aim of this systematic review is to identify, assess and synthesise the potential benefits of using PNF to improve the activities of daily living (ADL) and quality of life (QoL) of individuals with stroke. [...]
2017 - 10.1136/bmjopen-2017-016739
BMJ open, Vol. 7 Núm. 12 (january 2017) , p. e016739
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5.
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13 p, 254.2 KB |
Patient-Related Benefits for Adults with Cochlear Implantation : A Multicultural Longitudinal Observational Study
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Lenarz, Thomas (Medizinische Hochschule Hannover) ;
Muller, Lida (Tygerberg Hospital) ;
Czerniejewska-Wolska, Hanna (Poznań University of Medical Sciences) ;
Varela, Hector Vallés (Hospital Clinico Universitario Lozano Blesa) ;
Orús Dotú, César (Institut d'Investigació Biomèdica Sant Pau) ;
Durko, Marcin (Barlicki University Hospital) ;
Irujo, Alicia Huarte (Clinica Universitaria de Navarra) ;
Piszczatowski, Bartosz (Medical University of Bialystok) ;
Zadrożniak, Marek (Medical University of Lublin) ;
Irwin, Colin (Cochlear AG) ;
Graham, Petra L. (Macquarie University) ;
Wyss, Josie (Cochlear AG) ;
Universitat Autònoma de Barcelona
To assess subjectively perceived, real-world benefits longitudinally for unilateral cochlear implant (CI) recipients in a multinational population treated routinely. To identify possible predictors of self-reported benefits. [...]
2017 - 10.1159/000477533
Audiology and Neurotology, Vol. 22 Núm. 2 (january 2017) , p. 61-73
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6.
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11 p, 1.8 MB |
Real world patient-reported outcomes in HIV-infected adults switching to EVIPLERA®, because of a previous intolerance to cART. PRO-STR study
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Podzamczer, D. (Hospital Universitari de Bellvitge) ;
Rozas, N. (Hospital Universitari de Bellvitge) ;
Domingo, Pere (Institut d'Investigació Biomèdica Sant Pau) ;
Miralles, C. (Hospital Xeral de Vigo) ;
Van den Eynde, E. (Hospital Universitari de Bellvitge) ;
Romero, A. (Hospital de Especialidades de Puerto Real) ;
Deig, E. (Hospital General de Granollers) ;
Knobel Freud, Hernando (Hospital del Mar (Barcelona, Catalunya)) ;
Pasquau, J. (Hospital Universitario Virgen de las Nieves (Granada)) ;
Antela, A. (Complejo Hospitalario Universitario de Santiago de Compostela) ;
Clotet Sala, Bonaventura (Institut Germans Trias i Pujol. Hospital Universitari Germans Trias i Pujol) ;
Geijo, P. (Hospital Virgen de La Luz (Cuenca)) ;
Rodríguez de Castro, E. (Hospital Mateu Orfila) ;
Casado, M.A. (Pharmacoeconomics & Outcomes Research Iberia) ;
Muñoz, A. (Pharmacoeconomics & Outcomes Research Iberia) ;
Casado, A. (Pharmacoeconomics & Outcomes Research Iberia) ;
Universitat Autònoma de Barcelona
To investigate the impact of switching from stable Combined Antiretroviral Therapy (cART) to single-tablet regimen (RPV/FTC/TDF=EVIPLERA®/COMPLERA®) on patient-reported outcomes in HIV-infected adults who cannot tolerate previous cART, in a real-world setting. [...]
2018 - 10.2174/1570162X17666190212163518
Current HIV Research, Vol. 16 Núm. 6 (2018) , p. 425-435
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7.
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10 p, 690.6 KB |
Social inequalities in quality of life in a cohort of women diagnosed with breast cancer in Barcelona (DAMA Cohort)
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Graells-Sans, A. (Campus Docent Sant Joan de Déu) ;
Serral, Gemma (Institut d'Investigació Biomèdica Sant Pau) ;
Puigpinós i Riera, Rosa (Institut d'Investigació Biomèdica Sant Pau) ;
Bargalló, Xavier Aguilar (Hospital Clínic i Provincial de Barcelona) ;
Espinosa-Bravo, Martín (Hospital Universitari Vall d'Hebron) ;
Grau, Jaume (Hospital Clínic i Provincial de Barcelona) ;
Macià, Francesc (Institut Hospital del Mar d'Investigacions Mèdiques) ;
Quintana Ruiz, Maria Jesús (Institut d'Investigació Biomèdica Sant Pau) ;
Sala, Maria (Institut Hospital del Mar d'Investigacions Mèdiques) ;
Universitat Autònoma de Barcelona
Breast cancer is a challenge for women's health-related quality of life (QoL), compromising their physical health and emotional well-being. QoL is equally distributed among different social groups. The aim of this study to analyze the impact of clinical characteristics and social determinants of health on the QoL of a cohort of women diagnosed and/or treated for breast cancer between 2003 and 2013 in one of the main hospitals in Barcelona's public health network. [...]
2018 - 10.1016/j.canep.2018.03.007
Cancer Epidemiology, Vol. 54 (june 2018) , p. 38-47
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8.
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16 p, 720.8 KB |
Predictors of poor health-related quality of life among people living with HIV aged ≥60 years in the PISCIS cohort : Findings from the Vive+ project
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Bruguera Riera, Andreu (Institut Germans Trias i Pujol) ;
Egea Cortés, Laia (Institut Germans Trias i Pujol) ;
Mesías-Gazmuri, Jocelyn (Institut Germans Trias i Pujol) ;
Palacio-Vieira, Jorge (Institut Germans Trias i Pujol) ;
García Forero, Carlos (Universitat Internacional de Catalunya) ;
Miranda Sánchez, Cristina (Institut Germans Trias i Pujol. Hospital Universitari Germans Trias i Pujol) ;
Saumoy, Maria (Hospital Universitari de Bellvitge) ;
Fernández, E. (Institut d'Investigacions Biomèdiques August Pi i Sunyer) ;
Navarro, Gemma (Parc Taulí Hospital Universitari. Institut d'Investigació i Innovació Parc Taulí (I3PT)) ;
Ortí, Amat-Joaquim (Hospital de Tortosa Verge de la Cinta) ;
Miró, Josep (Instituto de Salud Carlos III) ;
Casabona-Barbarà, Jordi (Institut Germans Trias i Pujol) ;
Reyes-Urueña, Juliana (Centre d'Estudis Epidemiològics sobre el VIH/SIDA de Catalunya) ;
Universitat Autònoma de Barcelona
Introduction: Advancements in and accessibility to effective antiretroviral therapy has improved the life expectancy of people living with HIV, increasing the proportion of people living with HIV reaching older age (≥60 years), making this population's health-related quality of life (HRQoL) more relevant. [...]
2023 - 10.1111/hiv.13590
HIV Medicine, 2023
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10 p, 964.4 KB |
Evaluating quality of life in pediatric palliative care : a cross-sectional analysis of children's and parents' perspectives
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Toro-Pérez, Daniel (Universitat Autònoma de Barcelona) ;
Limonero García, Joaquim T. (Joaquim Timoteo) (Universitat Autònoma de Barcelona) ;
Guillén, Montserrat (Universitat de Barcelona. Departament d'Econometria) ;
Bolancé, Catalina (Universitat de Barcelona. Departament d'Econometria) ;
Vilarrubí, S.N. (Catalan Society of Pediatrics) ;
Camprodon-Rosanas, Ester (Hospital Sant Joan de Déu (Barcelona, Catalunya))
The patient's perspective is an essential component of understanding the individual experience of suffering in children with palliative needs, but it is a perspective that is often overlooked. The aim of this study was to compare the perception of quality of life (QoL) of children with life-limiting and life-threatening conditions expressed by the children themselves and their parents. [...]
2023 - 10.1007/s00431-023-05330-4
European Journal of Pediatrics, 2023
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10.
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35 p, 1.3 MB |
Fringe more than context : Perceived quality of life in informal settlements in a developing country: The case of Kabul, Afghanistan
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Shahraki, Saeed Zanganeh (University of Tehran. Department of Human Geography) ;
Hosseini, Ali (University of Tehran. Department of Human Geography) ;
Saurí i Pujol, David (Universitat Autònoma de Barcelona. Departament de Geografia) ;
Hussaini, Fatema (University of Tehran. Department of Human Geography)
Investigations of the quality and satisfaction of urban life in informal settlements remain largely overlooked in the existing literature especially in developing countries. About one-fifth of Afghanistan population is living in urban areas, however, the trend is changing very fast and the country observes now one of the highest urbanization rates in the world. [...]
2020 - 10.1016/j.scs.2020.102494
Sustainable Cities and Society, Vol. 63 (2020) , p. 102494
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