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Vázquez-Costa Creator: Springer Producer: Acrobat Distiller 10.1.8 (Windows) CreationDate: Fri Oct 21 01:27:43 2022 CEST ModDate: Wed Dec 28 13:29:29 2022 CET Custom Metadata: yes Metadata Stream: yes Tagged: no UserProperties: no Suspects: no Form: AcroForm JavaScript: no Pages: 17 Encrypted: no Page size: 595.276 x 790.866 pts Page rot: 0 File size: 359846 bytes Optimized: yes PDF version: 1.4 name type encoding emb sub uni object ID ------------------------------------ ----------------- ---------------- --- --- --- --------- KGRTVV+AdvSTONE-R Type 1C Custom yes yes no 505 0 LBAVLA+AdvSTONE-SB Type 1C WinAnsi yes yes no 506 0 LSTKTP+AdvPSSym Type 1C Custom yes yes no 516 0 BKRFIX+AdvSTONESF-R Type 1C WinAnsi yes yes no 513 0 TBHIAR+AdvSTONE-SBI Type 1C MacRoman yes yes no 514 0 YITXAE+AdvP4C4E74 Type 1C Custom yes yes no 515 0 RKXHND+AdvPSSPS-AS Type 1C Custom yes yes yes 523 0 DFTOAD+AdvPTimes Type 1C WinAnsi yes yes no 528 0 EKQMWM+AdvSTONE-I Type 1C WinAnsi yes yes no 187 0 NLXPCT+AdvSTONESF-B Type 1C WinAnsi yes yes no 179 0 OVVCQM+AdvOT6cddfb43.B Type 1C Custom yes yes yes 256 0 RVNHRY+AdvOT2015df00 Type 1C Custom yes yes yes 264 0 KPGNEY+AdvOT1a356080.I Type 1C Custom yes yes yes 251 0 NYNQLA+AdvOT8f27407c.BI Type 1C Custom yes yes yes 268 0 DGLXOE+AdvPS_SSYB Type 1C Custom yes yes yes 267 0 DCBQTD+AdvPTimesB Type 1C WinAnsi yes yes no 282 0 HAPBKL+Calibri Type 1C Custom yes yes yes 299 0 FJXVHI+AdvTir_symb Type 1C WinAnsi yes yes no 307 0 BYFROD+AdvPSMP4 Type 1C WinAnsi yes yes no 327 0 Jhove (Rel. 1.28.0, 2023-05-18) Date: 2024-12-14 02:48:09 CET RepresentationInformation: 303892.pdf ReportingModule: PDF-hul, Rel. 1.12.4 (2023-03-16) LastModified: 2024-12-13 12:03:32 CET Size: 359846 Format: PDF Version: 1.4 Status: Well-Formed and valid SignatureMatches: PDF-hul MIMEtype: application/pdf Profile: Linearized PDF PDFMetadata: Objects: 583 FreeObjects: 1 IncrementalUpdates: 1 DocumentCatalog: PageLayout: SinglePage PageMode: UseOutlines Language: EN Outlines: Item: Title: Validation of a Set of Instruments to Assess Patient- and Caregiver-Oriented Measurements in Spinal Muscular Atrophy: Results of the SMA-TOOL Study Destination: Title Children: Item: Title: Abstract Destination: Abs1 Children: Item: Title: Introduction Destination: ASec1 Item: Title: Methods Destination: ASec2 Item: Title: Results Destination: ASec3 Item: Title: Conclusions Destination: ASec4 Item: Title: Introduction Destination: Sec1 Item: Title: Methods Destination: Sec2 Children: Item: Title: Design Destination: Sec3 Item: Title: Measurements Destination: Sec4 Item: Title: Statistical Analysis Destination: Sec5 Item: Title: Results Destination: Sec6 Children: Item: Title: Psychometric Properties of Measurements Destination: Sec7 Children: Item: Title: SMAIS Patient and Caregiver Versions Destination: Sec8 Item: Title: Perceived Fatigability Destination: Sec9 Item: Title: Breathing and Voice Destination: Sec10 Item: Title: Sleep and Rest Destination: Sec11 Item: Title: Vulnerability Destination: Sec12 Item: Title: Discussion Destination: Sec13 Item: Title: Conclusions Destination: Sec14 Item: Title: Open Access Destination: Ack Item: Title: References Destination: Bib1 Info: Title: Validation of a Set of Instruments to Assess Patient- and Caregiver-Oriented Measurements in Spinal Muscular Atrophy: Results of the SMA-TOOL Study Author: Juan F. 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2022-10-21T04:57:43+05:30 Springer 2022-12-28T17:59:29+05:30 2022-12-28T17:59:29+05:30 Acrobat Distiller 10.1.8 (Windows) Spinal muscular atrophy; Patients and caregivers; Outcome measures; Quality of life; Symptom assessment; Disease burden application/pdf https://doi.org/10.1007/s40120-022-00411-2 Springer Healthcare Neurology and Therapy, https://doi.org/10.1007/s40120-022-00411-2 Spinal muscular atrophy Patients and caregivers Outcome measures Quality of life Symptom assessment Disease burden Validation of a Set of Instruments to Assess Patient- and Caregiver-Oriented Measurements in Spinal Muscular Atrophy: Results of the SMA-TOOL Study Juan F. Vázquez-Costa María Branas-Pampillón Julita Medina-Cantillo Mónica Povedano Inmaculada Pitarch-Castellano Mercedes López-Lobato Joaquín A. Fernández-Ramos Miguel Lafuente-Hidalgo Ricard Rojas-García José M. Caballero-Caballero Ignacio Málaga Jesús Eirís-Puñal Mencía De Lemus María G. Cattinari Rosana Cabello-Moruno Paola Díaz-Abós Victoria Sánchez-Menéndez Pablo Rebollo Jorge Maurino Marcos Madruga-Garrido 10.1007/s40120-022-00411-2 2010-04-23 true springer.com springerlink.com https://doi.org/10.1007/s40120-022-00411-2 10.1007/s40120-022-00411-2 2193-6536 12 1 89 105 journal Neurology and Therapy The Author(s) 2010-04-23 true 10.1007/s40120-022-00411-2 noindex springer.com springerlink.com VoR uuid:c9018fab-5071-4465-bb18-7aaaed10ad7e uuid:fc4bc0b9-180b-4882-b22b-492aec8632f4 default 1 converted uuid:49e13a6b-6031-4c82-af83-f8cc8c9adc52 converted to PDF/A-2b pdfToolbox 2022-12-28T17:58:21+05:30 converted uuid:bc79b4c7-3518-4749-9b14-20c65cdf417f converted to PDF/A-2b pdfToolbox 2022-12-28T17:59:29+05:30 2 B http://ns.adobe.com/pdfx/1.3/ pdfx Adobe Document Info PDF eXtension Schema external Mirrors crossmark:MajorVersionDate CrossmarkMajorVersionDate Text external Mirrors crossmark:CrossmarkDomainExclusive CrossmarkDomainExclusive Text internal Mirrors crossmark:DOI doi Text external Mirrors crossmark:CrosMarkDomains CrossMarkDomains seq Text internal A name object indicating whether the document has been modified to include trapping information robots Text internal ID of PDF/X standard GTS_PDFXVersion Text internal Conformance level of PDF/X standard GTS_PDFXConformance Text internal Company creating the PDF Company Text internal Date when document was last modified SourceModified Text http://crossref.org/crossmark/1.0/ crossmark Crossmark Schema internal Usual same as prism:doi DOI Text external The date when a publication was publishe. 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