94abe46675f7e7f1f60e2e2b8322bb12 321783.pdf 150f10bfb75966072b9c8d169770304202b037db 321783.pdf c6a7ebf8336c4db1ac67ed507bb7bda0b7b7bac8a4b2396e8cf654741e44fd84 321783.pdf Title: Toward European harmonization of national myasthenia gravis registries: modified Delphi procedure-based expert consensus on collectable data Subject: Orphanet Journal of Rare Diseases, https://doi.org/10.1186/s13023-024-03520-3 Keywords: Rare disease registry; Delphi procedure; Myasthenia gravis; European registry; Expert panel Author: Abderhmane Slioui Creator: Springer Producer: Acrobat Distiller 10.1.8 (Windows); modified using iText® 5.3.5 ©2000-2012 1T3XT BVBA (SPRINGER SBM; licensed version) CreationDate: Sun Mar 2 04:04:14 2025 CET ModDate: Tue Mar 11 10:35:11 2025 CET Custom Metadata: yes Metadata Stream: yes Tagged: no UserProperties: no Suspects: no Form: none JavaScript: no Pages: 13 Encrypted: no Page size: 595.276 x 790.866 pts Page rot: 0 File size: 1367469 bytes Optimized: no PDF version: 1.4 name type encoding emb sub uni object ID ------------------------------------ ----------------- ---------------- --- --- --- --------- MyriadPro-Regular Type 1C Custom yes no yes 57 0 MyriadPro-Bold Type 1C WinAnsi yes no yes 58 0 MyriadPro-It Type 1C Custom yes no yes 59 0 MyriadPro-Semibold Type 1C Custom yes no yes 73 0 MyriadPro-Light Type 1C Custom yes no yes 74 0 MyriadPro-Regular2 Type 1C WinAnsi yes no no 586 0 WarnockPro-Regular Type 1C Custom yes no yes 60 0 VVANVI+ArialMT Type 1C Custom yes yes no 75 0 MyriadPro-Regular3 Type 1C WinAnsi yes no yes 433 0 TSBBTM+STIX-Regular Type 1C Custom yes yes yes 92 0 IRFUVL+WarnockPro-It Type 1C WinAnsi yes yes yes 104 0 Jhove (Rel. 1.28.0, 2023-05-18) Date: 2025-11-27 04:05:03 CET RepresentationInformation: 321783.pdf ReportingModule: PDF-hul, Rel. 1.12.4 (2023-03-16) LastModified: 2025-11-26 13:44:38 CET Size: 1367469 Format: PDF Version: 1.4 Status: Well-Formed and valid SignatureMatches: PDF-hul MIMEtype: application/pdf PDFMetadata: Objects: 676 FreeObjects: 1 IncrementalUpdates: 0 DocumentCatalog: ViewerPreferences: HideToolbar: false HideMenubar: false HideWindowUI: false FitWindow: false CenterWindow: false DisplayDocTitle: false NonFullScreenPageMode: UseNone Direction: L2R ViewArea: CropBox ViewClip: CropBox PrintArea: CropBox PageClip: CropBox PageLayout: SinglePage PageMode: UseOutlines Language: EN Outlines: Item: Title: Toward European harmonization of national myasthenia gravis registries: modified Delphi procedure-based expert consensus on collectable data Children: Item: Title: Abstract Children: Item: Title: Background Item: Title: Results Item: Title: Conclusions Item: Title: Background Item: Title: Methods Children: Item: Title: Expert panel selection Item: Title: Literature and database review Item: Title: Patient associations and pharmaceutical companies Item: Title: Delphi design and survey Item: Title: Results Children: Item: Title: Literature review Item: Title: Assessment of the perspectives of patient associations and pharmaceutical companies Item: Title: Delphi rounds Item: Title: Informed consent form (ICF) Item: Title: Demographics and center information Item: Title: Medical history Item: Title: Thymus disease Item: Title: MG scales to measure severity and quality of life Item: Title: MG therapies Item: Title: Comorbidities Item: Title: Excluded items Item: Title: Frequency of data collection Item: Title: Discussion Item: Title: Conclusions Item: Title: Acknowledgements Item: Title: References Info: Title: Toward European harmonization of national myasthenia gravis registries: modified Delphi procedure-based expert consensus on collectable data Author: Abderhmane Slioui Subject: Orphanet Journal of Rare Diseases, https://doi.org/10.1186/s13023-024-03520-3 Keywords: Rare disease registry; 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