February 1974, a group of about ten people got together in a conference room at John Hopkins Hospital. We all had one major thing in common. We had children
with Mucopolysaccharidoses or Mucolipidoses. We gathered there that day to talk about our children and to ask questions of their doctors who were also present.
We all had a desperate need to know what we were up against and what was happening to our children. We had nowhere to turn so we turned to each other.
Our first meeting was initiated and encouraged by Jill F. Shuger, a case worker with families with MPS children at the Medical Genetic Division of the John
Hopkins Hospital.