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Patient-centered care in breast cancer genetic clinics
Brédart, Anne (Univesité Paris Descartes)
Anota, Amélie (Centre Hospitalier Régional Universitaire de Besançon)
Dick, Julia (Cancer Center Cologne)
Kuboth, Violetta (Cancer Center Cologne)
Lareyre, Olivier (Institut Curie)
De Pauw, Antoine (Institut Curie)
Cano, Alejandra (Universitat Autònoma de Barcelona. Departament de Psicologia Bàsica, Evolutiva i de l'Educació)
Stoppa-Lyonnet, Dominique (Institut Curie)
Schmutzler, Rita (Cancer Center Cologne)
Dolbeault, Sylvie (Centre de Recherche en Épidémiologie et Santé des Populations (CESP))
Kop, Jean-Luc (Université de Lorraine)

Data: 2018
Resum: With advances in breast cancer (BC) gene panel testing, risk counseling has become increasingly complex, potentially leading to unmet psychosocial needs. We assessed psychosocial needs and correlates in women initiating testing for high genetic BC risk in clinics in France and Germany, and compared these results with data from a literature review. Among the 442 counselees consecutively approached, 212 (83%) in France and 180 (97%) in Germany, mostly BC patients (81% and 92%, respectively), returned the 'Psychosocial Assessment in Hereditary Cancer' questionnaire. Based on the Breast and Ovarian Analysis of Disease Incidence and Carrier Estimation Algorithm (BOADICEA) BC risk estimation model, the mean BC lifetime risk estimates were 19% and 18% in France and Germany, respectively. In both countries, the most prevalent needs clustered around the “living with cancer” and “children-related issues” domains. In multivariate analyses, a higher number of psychosocial needs were significantly associated with younger age (b = −0. 05), higher anxiety (b = 0. 78), and having children (b = 1. 51), but not with country, educational level, marital status, depression, or loss of a family member due to hereditary cancer. These results are in line with the literature review data. However, this review identified only seven studies that quantitatively addressed psychosocial needs in the BC genetic counseling setting. Current data lack understandings of how cancer risk counseling affects psychosocial needs, and improves patient-centered care in that setting.
Drets: Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, fins i tot amb finalitats comercials, sempre i quan es reconegui l'autoria de l'obra original. Creative Commons
Llengua: Anglès.
Document: article ; recerca ; publishedVersion
Matèria: Breast cancer ; Genetic risk ; Risk counseling ; Psychosocial needs ; Distress ; Service delivery ; Culture
Publicat a: International Journal of Environmental Research and Public Health, Vol. 15 (february 2018) , ISSN 1660-4601

PMID: 29439543
DOI: 10.3390/ijerph15020319


16 p, 352.3 KB

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 Registre creat el 2018-03-26, darrera modificació el 2019-02-04



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