Gaps in clinical research in frontotemporal dementia : A call for diversity and disparities-focused research
Franzen, Sanne (Erasmus MC University Medical Center)
Nuytemans, Karen (Miller School of Medicine)
Bourdage, Renelle (Université Paris Cité)
Caramelli, Paulo (Universidade Federal de Minas Gerais)
Ellajosyula, Ratnavalli (Manipal Academy of Higher Education (MAHE))
Finger, Elizabeth (University of Western Ontario)
Illán-Gala, Ignacio (Institut d'Investigació Biomèdica Sant Pau)
Loi, Samantha M. (University of Melbourne)
Morhardt, Darby (Northwestern University Feinberg School of Medicine)
Pijnenburg, Yolande (Amsterdam Universitair Medische Centra (Amsterdam, Països Baixos). Amsterdam Neuroscience)
Rascovsky, Katya (University of Pennsylvania Perelman School of Medicine)
Williams, Monique M. (St. Louis Oak Street Health)
Yokoyama, Jennifer S (University of California)
Alladi, Suvarna (National Institute of Mental Health and Neurosciences)
Ayhan, Yavuz (Hacettepe University)
Broce, Iris (University of California)
Castro-Suarez, Sheila (University of California San Francisco)
Coleman, Kristy (Parkwood Institute Research)
de Souza, Leonardo Cruz (Universidade Federal de Minas Gerais)
Dacks, Penny A. (The Association for Frontotemporal Degeneration)
de Boer, Sterre C.M. (Amsterdam Universitair Medische Centra (Amsterdam, Països Baixos). Amsterdam Neuroscience)
de Leon, Jessica (University of California)
Dodge, Shana (The Association for Frontotemporal Degeneration)
Grasso, Stephanie (The University of Texas at Austin)
Gupta, Veer (Macquarie University)
Ghoshal, Nupur (Washington University School of Medicine)
Kamath, Vidyulata (The Johns Hopkins University School of Medicine)
Kumfor, Fiona (The University of Sydney)
Matias-Guiu, Jordi A. (Universidad Complutense de Madrid)
Narme, Pauline (Université Paris Cité)
Nielsen, T. Rune (Copenhagen University Hospital - Rigshospitalet)
Okhuevbie, Daniel (University of Wisconsin-Madison)
Piña-Escudero, Stefanie D. (University of California San Francisco)
Garcia, Ramiro Ruiz (National Institute of Neurology and Neurosurgery)
Scarioni, Marta (Universitair Ziekenhuis Gent)
Slachevsky, Andrea (Clínica Alemana-Universidad del Desarrollo)
Suarez-Gonzalez, Aida (University College London)
Tee, Boon Lead (University of California)
Tsoy, Elena (University of California San Francisco)
Ulugut, Hülya (University of California)
Babulal, Ganesh Muneshwar (The George Washington University School of Medicine and Health Sciences)
Onyike, Chiadi U. (The Johns Hopkins University School of Medicine)
Universitat Autònoma de Barcelona

Data:	2023
Resum:	Frontotemporal dementia (FTD) is one of the leading causes of dementia before age 65 and often manifests as abnormal behavior (in behavioral variant FTD) or language impairment (in primary progressive aphasia). FTD's exact clinical presentation varies by culture, language, education, social norms, and other socioeconomic factors; current research and clinical practice, however, is mainly based on studies conducted in North America and Western Europe. Changes in diagnostic criteria and procedures as well as new or adapted cognitive tests are likely needed to take into consideration global diversity. This perspective paper by two professional interest areas of the Alzheimer's Association International Society to Advance Alzheimer's Research and Treatment examines how increasing global diversity impacts the clinical presentation, screening, assessment, and diagnosis of FTD and its treatment and care. It subsequently provides recommendations to address immediate needs to advance global FTD research and clinical practice.
Drets:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, fins i tot amb finalitats comercials, sempre i quan es reconegui l'autoria de l'obra original.
Llengua:	Anglès
Document:	Article ; recerca ; Versió publicada
Matèria:	Cultural diversity ; Diagnosis ; Ethnicity ; Frontotemporal dementia ; Language ; Literacy ; Neuropsychological tests ; Primary progressive aphasia
Publicat a:	Alzheimer's & dementia, Vol. 19 Núm. 12 (december 2023) , p. 5817-5836, ISSN 1552-5279

DOI: 10.1002/alz.13129
PMID: 37270665

20 p, 411.3 KB

El registre apareix a les col·leccions:
Documents de recerca > Documents dels grups de recerca de la UAB > Centres i grups de recerca (producció científica) > Ciències de la salut i biociències > Institut de Recerca Sant Pau
Articles > Articles de recerca
Articles > Articles publicats