Effectiveness of a psychoeducational intervention on myositis patients' quality of life and well-being : a randomized controlled trial
Armadans Tremolosa, Immaculada (Universitat de Barcelona)
Palacin Lois, Maria Ramona (Universitat de Barcelona)
Castrechini Trotta, Ángela (Universitat de Barcelona)
Sanduvete-Chaves, Susana (Universidad de Sevilla)
Chacón-Moscoso, Salvador (Universidad de Sevilla)
Selva O'Callaghan, Albert (Universitat Autònoma de Barcelona. Departament de Medicina)

Data:	2024
Resum:	Myositis is a rare disease associated with impaired health-related quality of life. A study evaluating the effectiveness of an intervention to improve the quality of life and well-being of myositis patients is presented. All myositis patients in a health district were contacted. Thirty-four eligible patients were randomly assigned to the experimental (n = 17) or control (n = 17) group. A psychoeducational intervention of 5 100-min sessions focusing on the disease as related to daily life was conducted only in experimental patients. Several reliable tools to measure quality of life and well-being were administered twice, before and after the intervention, to both groups. In the experimental group, post-test scores were higher than pre-test in quality of life, well-being, and self-efficacy to manage the disease. Improvements were more evident in the experimental group than controls in 70% of the variables studied. Specifically, sedentariness decreased and satisfaction with social relationships increased in the post-test evaluation to a greater degree in the experimental group than in controls. This randomized controlled trial on a representative sample of myositis patients in an extensive population provides evidence indicating the effectiveness of a psychoeducational intervention for improving HRQoL, well-being, and self-efficacy to manage the disease.
Ajuts:	Instituto de Salud Carlos III PI22-00708 Ministerio de Ciencia e Innovación PID2020-115486GB-100
Drets:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, fins i tot amb finalitats comercials, sempre i quan es reconegui l'autoria de l'obra original.
Llengua:	Anglès
Document:	Article ; recerca ; Versió publicada
Matèria:	HRQoL ; Myositis ; Inflammatory myopathy ; Clinical trial ; Psychoeducational intervention
Publicat a:	Orphanet journal of rare diseases, Vol. 19 Núm. 1 (November 2024) , ISSN 1750-1172

DOI: 10.1186/s13023-024-03426-0
PMID: 39487522

10 p, 1.1 MB

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