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10 p, 774.9 KB |
The impact of improving haemophilia A management within the Spanish National Healthcare System : a social return on investment analysis
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Soto, Inmaculada (Hospital Universitario Central de Asturias) ;
Mateo, José (Institut d'Investigació Biomèdica Sant Pau) ;
García-Diego, Daniel Aníbal (Federación Española de Hemofilia - FEDHEMO) ;
Gil, Beatriz (Roche Farma España) ;
Ruiz-Beato, Elena (Roche Farma España) ;
Ivanova, Yoana (Weber) ;
Martín Lorenzo, Teresa (Weber) ;
Maravilla-Herrera, Paulina (Weber) ;
Hidalgo-Vega, Álvaro (Universidad de Castilla-La Mancha) ;
Merino, María (Weber) ;
Universitat Autònoma de Barcelona
Haemophilia A (HA) has been associated with poor health-related quality of life and a large economic burden, accentuated by severity, arthropathy, and inhibitors. To meet global standards of care, the management of HA should align with the principles of care outlined by the World Federation of Haemophilia. [...]
2022 -  10.1186/s12913-021-07447-4
BMC health services research, Vol. 22 Núm. 1 (december 2022) , p. 115
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32 p, 1.4 MB |
Dolphin-WET-Development of a Welfare Evaluation Tool for Bottlenose Dolphins (Tursiops truncatus) under Human Care
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Baumgartner, Katrin (Behavioral Ecology and Conservation Lab) ;
Hüttner, Tim (Behavioral Ecology and Conservation Lab) ;
Clegg, Isabella L. K. (Animal Welfare Expertise) ;
Garcia Hartmann, Manuel (MarLab) ;
García-Párraga, Daniel (Fundación Oceanográfic de la Comunitat Valenciana) ;
Manteca Vilanova, Xavier (Universitat Autònoma de Barcelona. Departament de Ciència Animal i dels Aliments) ;
Mercera, Birgitta (Parc Astérix) ;
Monreal-Pawlowsky, Tania (International Zoo Veterinary Group) ;
Pilenga, Cristina (Zoomarine) ;
Ternes, Kerstin (Zoo Duisburg) ;
Talló Parra, Oriol (Universitat Autònoma de Barcelona. Departament de Ciència Animal i dels Aliments) ;
Vaicekauskaite, Ruta (Fox Consulting) ;
von Fersen, Lorenzo (Nuremberg Zoo) ;
Yon, Lisa (University of Nottingham) ;
Delfour, Fabienne (Ecole Nationale Vétérinaire de Toulouse)
The welfare committee of the European Association for Aquatic Mammals (EAAM) set up a group of experts on welfare science, cetacean biology, and zoo animal medicine across Europe to develop a comprehensive tool to evaluate the welfare of bottlenose dolphins (Tursiops truncatus) under human care named Dolphin-WET. [...]
2024 - 10.3390/ani14050701
Animals, Vol. 14 (february 2024)
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10 p, 3.3 MB |
Feasibility and outcomes after dose reduction of immunochemotherapy in young adults with Burkitt lymphoma and leukemia : results of the BURKIMAB14 trial
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Ribera, Josep Maria (Institut Germans Trias i Pujol. Institut de Recerca contra la Leucèmia Josep Carreras) ;
Morgades, Mireia (Institut Germans Trias i Pujol. Institut de Recerca contra la Leucèmia Josep Carreras) ;
Garcia-Calduch, Olga (Institut Germans Trias i Pujol. Institut de Recerca contra la Leucèmia Josep Carreras) ;
Sirvent, Maialen (Hospital Universitario de Donostia) ;
Buendia, Buenaventura (Hospital Universitario 12 de Octubre) ;
Cervera, Marta (Institut Catala d'Oncologia-Hospital Joan XXIII) ;
Luzardo, Hugo (Hospital Universitario de Gran Canaria Dr. Negrin) ;
Hernandez-Rivas, Jesus Maria (Hospital Universitario de Salamanca) ;
Sitges, Marta (Hospital Universitari de Girona Doctor Josep Trueta) ;
Garcia-Cadenas, Irene (Hospital de la Santa Creu i Sant Pau (Barcelona, Catalunya)) ;
Abrisqueta, Pau (Hospital Universitari Vall d'Hebron) ;
Montesinos, Pau (Hospital Universitari i Politècnic La Fe (València)) ;
Bastos-Oreiro, Mariana (Hospital General Universitario Gregorio Marañón) ;
De Llano, Maria Paz Queipo (Hospital Universitario Virgen de la Victoria (Màlaga, Andalusia)) ;
Bravo, Pilar (Hospital Universitario de Fuenlabrada. Madrid) ;
Torrent, Anna (Institut Germans Trias i Pujol. Institut de Recerca contra la Leucèmia Josep Carreras) ;
Herrera, Pilar (Hospital Universitario Ramon y Cajal) ;
Garcia-Guinon, Antonni (Hospital Universitari Arnau de Vilanova) ;
Vall-Llovera, Ferran (Hospital Universitari MútuaTerrassa) ;
Serrano, Josefina (Hospital Universitario Reina Sofía (Córdoba, Espanya)) ;
Terol, Maria José (Hospital Clinico Universitario de Valencia) ;
Bergua, Juan Miguel (Hospital San Pedro de Alcántara) ;
Garcia-Noblejas, Ana (Hospital Universitario de La Princesa) ;
Barrenetxea, Cristina (Hospital Universitario Basurto) ;
Llorente, Laura (Hospital Universitario HM Sanchinarro) ;
Garcia-Belmonte, Daniel (Hospital Universitario La Zarzuela) ;
Gimeno, Eva (Hospital del Mar (Barcelona, Catalunya)) ;
Cladera, Antonia (Hospital Universitari Son Llatzer) ;
Mercadal, Santiago (Institut Català d'Oncologia) ;
Sancho, Juan Manuel (Institut Germans Trias i Pujol. Institut de Recerca contra la Leucèmia Josep Carreras)
High dose-intensive or infusional intermediate-dose immunochemotherapy is highly effective treatment for Burkitt lymphoma irrespective of human immunodeficiency virus (HIV) infection. However, toxicities of these regimens are relevant, especially in older adults and elderly patients. [...]
2024 - 10.3324/haematol.2023.283342
Haematologica, Vol. 109 Núm. 2 (january 2024) , p. 543-552
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17 p, 428.1 KB |
Datos y democracia : ciberespacio y gobernanza digital en Taiwán
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García González, Daniel (Universitat Nacional de Taiwán)
El ámbito de la gobernanza digital en Taiwán ha sido testigo de un constante crecimiento desde finales del siglo XX, llegando hasta nuestros días con hitos como el de la gestión de la pandemia de COVID-19 o el de la creación del Ministerio de Asuntos Digitales. [...]
L'àmbit de la governança digital a Taiwan ha estat testimoni d'un creixement constant des de finals del segle XX, arribant fins als nostres dies amb fites com el de la gestió de la pandèmia de COVID-19 o el de la creació del Ministeri d'Afers Digitals. [...]
The field of digital governance in Taiwan has witnessed constant growth since the end of the 20th century, up to the present day, with recent milestones such as the management of the COVID-19 pandemic and the creation of the Ministry of Digital Affairs. [...]
2024 - 10.5565/rev/tdevorado.222
Tiempo devorado, Vol. 9 Núm. 1 (2024) , p. 52-68 (Articles)
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17 p, 346.8 KB |
Towards a politics of recognition : exploring the symbolic contexts of material agroecological transitions
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López-García, Daniel (Fundación Entretantos) ;
Vázquez-Macías, Gabriela (Fundación Entretantos) ;
García-Fernández, Javier (Fundación Entretantos) ;
Schmitt, Maggie (Fundación Entretantos) ;
Ortega-Faura, Paula (Fundación Entretantos) ;
Espluga, Josep 1964- (Universitat Autònoma de Barcelona. Institut de Govern i Polítiques Públiques)
Scientific debates on agroecology highlight the relevance of appropriate narratives as a means to widen and amplify agroecological transitions in the material world. However, it is actually far-right discourses-often linked to populist political proposals-which, though not majoritarian, are reaching broad and growing diffusion among both rural communities and farmers. [...]
2023 - 10.3390/su151310091
Sustainability, Vol. 15 Núm. 13 (july 2023) , p. 10091
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11 p, 3.9 MB |
Interlaboratory study assessing the analysis of supercapacitor electrochemistry data
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Gittins, Jamie W. (University of Cambridge) ;
Chen, Yuan (Imperial College London) ;
Arnold, Stefanie (Saarland University) ;
Augustyn, Veronica (North Carolina State University) ;
Balducci, Andrea (Friedrich-Schiller-University Jena) ;
Brousse, Thierry (Réseau sur le Stockage Electrochimique de l'énergie) ;
Frackowiak, Elżbieta (Poznan University of Technology) ;
Gómez-Romero, Pedro 1959- (Institut Català de Nanociència i Nanotecnologia) ;
Kanwade, Archana (Indian Institute of Technology Indore) ;
Köps, Lukas (Friedrich-Schiller-University Jena) ;
Jha, Plawan Kumar (University of Turku) ;
Lyu, Dongxun (University of Cambridge) ;
Meo, Michele (University of Southampton. Department of Aeronautics and Astronautics) ;
Pandey, Deepak (University of Central Florida) ;
Pang, Le (Queensland University of Technology) ;
Presser, Volker (Saarene - Saarland Center for Energy Materials and Sustainability) ;
Rapisarda, Mario (University of Southampton. Department of Aeronautics and Astronautics) ;
Rueda García, Daniel (Institut Català de Nanociència i Nanotecnologia) ;
Saeed, Saeed (North Carolina State University. Department of Materials Science and Engineering) ;
Shirage, Parasharam M. (Indian Institute of Technology Indore. Department of Metallurgy Engineering and Materials Science) ;
Ślesiński, Adam (Poznan University of Technology) ;
Soavi, Francesca (National Reference Center for Electrochemical Energy Storage) ;
Thomas, Jayan (University of Central Florida) ;
Titirici, Maria-Magdalena (Imperial College London) ;
Wang, Hongxia (Queensland University of Technology) ;
Xu, Zhen (Imperial College London) ;
Yu, Aiping (University of Waterloo. Department of Chemical Engineering) ;
Zhang, Maiwen (University of Waterloo. Department of Chemical Engineering) ;
Forse, Alexander C. (University of Cambridge)
Supercapacitors are fast-charging energy storage devices of great importance for developing robust and climate-friendly energy infrastructures for the future. Research in this field has seen rapid growth in recent years, therefore consistent reporting practices must be implemented to enable reliable comparison of device performance. [...]
2023 - 10.1016/j.jpowsour.2023.233637
Journal of power sources, Vol. 585 (November 2023) , art. 233637
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8 p, 657.2 KB |
In vivo cholinergic basal forebrain degeneration and cognition in Parkinson's disease : Imaging results from the COPPADIS study
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Grothe, Michel (Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas) ;
Labrador-Espinosa, Miguel A. (Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas) ;
Jesús Maestre, Silvia (Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas) ;
Macías-García, Daniel (Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas) ;
Adarmes-Gómez, A.D (Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas) ;
Carrillo, Fátima (Instituto de Biomedicina de Sevilla) ;
Iglesias Camacho, Elena (Instituto de Biomedicina de Sevilla) ;
Franco-Rosado, Pablo (Instituto de Biomedicina de Sevilla) ;
Roldán Lora, Florinda (Hospital Universitario Virgen del Rocío (Sevilla, Andalusia)) ;
Martín-Rodríguez, Juan Francisco (Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas) ;
Aguilar Barberà, Miquel (Hospital Universitari MútuaTerrassa (Terrassa, Catalunya)) ;
Pastor, Pau (Hospital Universitari MútuaTerrassa (Terrassa, Catalunya)) ;
Escalante Arroyo, Sonia (Hospital de Tortosa Verge de la Cinta) ;
Soriano Vila, Berta (Institut Català de la Salut) ;
Cots-Foraster, Anna (Institut Català de la Salut) ;
Ruiz Martínez, Javier (Biodonostia Osasun Ikerketako Institutura (País Basc)) ;
Carrillo Padilla, Francisco (Hospital Universitario de Canarias (La Laguna)) ;
Pueyo Morlans, Mercedes (Hospital Universitario de Canarias (La Laguna)) ;
Gonzalez-Aramburu, Isabel (Hospital Universitario Marqués de Valdecilla (Santander, Cantabria)) ;
Infante Ceberio, Jon (Hospital Universitario Marqués de Valdecilla (Santander, Cantabria)) ;
Hernández Vara, Jorge (Hospital Universitari Vall d'Hebron) ;
Fàbregues-Boixar i Nebot, Oriol de (Hospital Universitari Vall d'Hebron) ;
de Deus Fonticoba, Teresa (Complejo Hospitalario Universitario de Ferrol) ;
Pascual-Sedano, Berta María (Institut d'Investigació Biomèdica Sant Pau) ;
Kulisevsky, Jaime (Institut d'Investigació Biomèdica Sant Pau) ;
Martínez-Martín, Pablo (Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas) ;
Santos García, Diego (Complejo Hospitalario Universitario de A Coruña) ;
Mir, Pablo (Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas)
Introduction: We aimed to assess associations between multimodal neuroimaging measures of cholinergic basal forebrain (CBF) integrity and cognition in Parkinson's disease (PD) without dementia. Methods: The study included a total of 180 non-demented PD patients and 45 healthy controls, who underwent structural MRI acquisitions and standardized neurocognitive assessment through the PD-Cognitive Rating Scale (PD-CRS) within the multicentric COPPADIS-2015 study. [...]
2021 - 10.1016/j.parkreldis.2021.05.027
Parkinsonism and Related Disorders, Vol. 88 (july 2021) , p. 68-75
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