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8 p, 746.3 KB |
Factors associated with quality of care in inflammatory bowel diseases : a view from patient's side using the IQCARO quality of care decalogue
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Casellas, F. (Parc Taulí Hospital Universitari. Institut d'Investigació i Innovació Parc Taulí (I3PT)) ;
Calvet Calvo, Xavier (Centro de Investigación Biomédica en Red de Enfermedades Hepáticas y Digestivas) ;
Carpio, Daniel (Complejo Hospitalario Universitario de Pontevedra) ;
Vera-Mendoza, Isabel (Hospital Universitario de Puerta de Hierro) ;
Saldaña, R. (Asociación de Crohn y Colitis Ulcerosa de Madrid) ;
Mínguez, M. (Universitat de València) ;
Marín, L. (Institut Germans Trias i Pujol. Hospital Universitari Germans Trias i Pujol) ;
Juliá, Berta (Medical Affairs Department, Merck Sharp & Dohme, Madrid, Spain) ;
Universitat Autònoma de Barcelona
Quality of care (QoC) is a highly important topic in inflammatory bowel disease (IBD). We recently elaborated a decalogue of QoC indicators (IQCARO-QoC) developed by IBD patients. The aim of the present study was to assess the factors associated with patients' evaluation of QoC in Spain using the IQCARO-QoC Decalogue recently developed by IBD patients. [...]
2021 -  10.1186/s12876-021-01968-2
BMC Gastroenterology, Vol. 21 (october 2021)
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7 p, 467.1 KB |
Quality of care assessment and improvement in aortic stenosis - rationale and design of a multicentre registry (IMPULSE)
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Frey, Norbert (University of Kiel) ;
Steeds, Richard P. (University of Birmingham) ;
Serra, Antonio (Institut d'Investigació Biomèdica Sant Pau) ;
Schulz, Eberhard (University Clinic Mainz) ;
Baldus, Stephan (Heart Center of the University Clinic Cologne) ;
Lutz, Matthias (University of Kiel) ;
Pohlmann, Christiane (Institute for Pharmacology and Preventive Medicine) ;
Kurucova, Jana (Edwards Lifesciences) ;
Bramlage, Peter (Institute for Pharmacology and Preventive Medicine) ;
Messika-Zeitoun, David (Bichat Hospital) ;
Universitat Autònoma de Barcelona
Severe aortic stenosis (AS) is a common, serious valve disease in which no effective medical therapy is available and, if not treated by intervention, has a 5-year survival of only 40-60%. Despite the availability of guidelines supporting the effective use of surgical aortic valve replacement (SAVR) or transcatheter aortic valve implantation (TAVI) to treat the majority of these patients, adherence to these guidelines in clinical practice is still unsatisfactory. [...]
2017 - 10.1186/s12872-016-0439-4
BMC Cardiovascular disorders, Vol. 17 Núm. 1 (may 2017) , p. 5
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16 p, 1.5 MB |
Facilitated Data Relay and Effects on Treatment of Severe Aortic Stenosis in Europe
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Steeds, Richard P. (University of Birmingham) ;
Lutz, Matthias (University of Kiel) ;
Thambyrajah, Jeetendra (James Cook Hospital) ;
Serra Peñaranda, Antonio (Institut d'Investigació Biomèdica Sant Pau) ;
Schulz, Eberhard (University Clinic Mainz) ;
Maly, Jiri (Charles University) ;
Aiello, Marco (Foundation IRCCS Policlinico S.Matteo) ;
Rudolph, Tanja K. (University of Cologne Heart Center) ;
Lloyd, Guy (St Bartholomew's Hospital) ;
Bortone, Alessandro Santo (University of Bari) ;
Hauptmann, Karl Eugen (Krankenhaus der Barmherzigen Brüder Trier) ;
Clerici, Alberto (University of Turin) ;
Delle-Karth, Georg (Hietzing Hospital) ;
Rieber, Johannes (University of Munich) ;
Indolfi, Ciro (University Magna Graecia) ;
Mancone, Massimo (Sapienza University of Rome) ;
Belle, Loic (Centre Hospital d'Annecy) ;
Lauten, Alexander (University Heart Center & Charité) ;
Arnold, Martin (University Hospital) ;
Bouma, Berto J. (University of Amsterdam) ;
Deutsch, Cornelia (Institute for Pharmacology and Preventive Medicine) ;
Kurucova, Jana (Edwards Lifesciences) ;
Thoenes, Martin (Edwards Lifesciences) ;
Bramlage, Peter (Institute for Pharmacology and Preventive Medicine) ;
Frey, Norbert (University of Kiel) ;
Messika-Zeitoun, David (University of Ottawa Heart Institute) ;
Universitat Autònoma de Barcelona
Many patients with severe aortic stenosis are referred late with advanced symptoms or inappropriately denied intervention. The objective was to investigate whether a structured communication to referring physicians (facilitated data relay) might improve the rate and timeliness of intervention. [...]
2019 - 10.1161/JAHA.119.013160
Journal of the American Heart Association: Cardiovascular and Cerebrovascular Disease, Vol. 8 Núm. 19 (january 2019) , p. e013160
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7 p, 263.4 KB |
Spanish survey on follow-up programmes for children born very preterm
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Pallás-Alonso, Carmen (División de Neonatología. Instituto de Investigación Sanitaria i+12. Hospital Universitario 12 de Octubre. Universidad Complutense de Madrid) ;
Loureiro, Begoña (Hospital Universitario de Cruces. Unidad Neonatal) ;
De la Cruz Bértolo, Javier (Instituto de Investigación Sanitaria Hospital 12 de Octubre. Hospital Universitario 12 de Octubre. Universidad Complutense de Madrid. Servicio de Neonatología) ;
García, Pilar (Hospital Clínico Universitario de Salamanca. Servicio de Neonatología) ;
Ginovart, Gemma (Institut d'Investigació Biomèdica Sant Pau) ;
Jiménez, Ana (Hospital de Algeciras. Servicio de Neonatología) ;
Martín, Yolanda (Centro de Salud Goya. Pediatría) ;
Soriano, Javier (Centro de Salud Fuensanta. Pediatría) ;
Torres, María José (Hospital Universitario 12 de Octubre. Servicio de Neonatología) ;
Vento Torres, Máximo (Hospital Universitari i Politècnic La Fe (València))
Aim: To describe variations in practice between follow-up programmes for very preterm children born at less than 32 weeks' gestation or with very low birth weight of less than 1,500 g. Methods: A survey on follow-up practices was electronically distributed to level II and III units among hospitals of the Spanish National Health Service in 2016. [...]
2019 - 10.1111/apa.14647
Acta Paediatrica, International Journal of Paediatrics, Vol. 108 Núm. 6 (june 2019) , p. 1042-1048
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5.
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10 p, 1.1 MB |
Monitoring and evaluation of breast cancer screening programmes : Selecting candidate performance indicators
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Muratov, Sergei (McMaster University (Canadà)) ;
Canelo Aybar, Carlos Gilberto (Institut d'Investigació Biomèdica Sant Pau) ;
Tarride, Jean-Eric (McMaster University (Canadà)) ;
Alonso-Coello, Pablo (Institut d'Investigació Biomèdica Sant Pau) ;
Dimitrova, Nadya (Joint Research Centre) ;
Borisch, Bettina (University of Geneva) ;
Castells, Xavier (Institut Hospital del Mar d'Investigacions Mèdiques) ;
Duffy, Stephen W. (Queen Mary University of London) ;
Fitzpatrick, Patricia (UCD School of Public Health) ;
Follmann, Markus (German Cancer Society) ;
Giordano, Livia (CPO-Piedmont - AOU Città della Salute e della Scienza) ;
Hofvind, Solveig (Cancer Registry of Norway) ;
Lebeau, Annette (University Medical Center Hamburg-Eppendorf) ;
Quinn, Cecily (Ordensklinikum Linz Elisabethinen) ;
Torresin, Alberto (ASST Grande Ospedale Metropolitano) ;
Vialli, Claudia (Joint Research Centre) ;
Siesling, Sabine (University of Twente) ;
Ponti, Antonio (CPO-Piedmont - AOU Città della Salute e della Scienza) ;
Giorgi Rossi, Paolo (AUSL Reggio Emilia. IRCCS) ;
Schünemann, Holger (McMaster University (Canadà)) ;
Nyström, Lennarth (Umeå University) ;
Broeders, Mireille (Radboud University Medical Center) ;
Autelitano, Mariangela ;
Colzani, Edoardo ;
Daneš, Jan ;
Gräwingholt, Axel ;
Ioannidou-Mouzaka, Lydia ;
Knox, Susan ;
Langendam, Miranda ;
McGarrigle, Helen ;
Pérez Gómez, Elsa ;
Van Engen, Ruben ;
Warman, Sue ;
Young, Kenneth ;
Van Landsveld-Verhoeven, Cary ;
Lerda, Donata ;
Saz-Parkinson, Zuleika ;
Parmelli, Elena ;
Janusch-Roi, Annett ;
Universitat Autònoma de Barcelona
In the scope of the European Commission Initiative on Breast Cancer (ECIBC) the Monitoring and Evaluation (M&E) subgroup was tasked to identify breast cancer screening programme (BCSP) performance indicators, including their acceptable and desirable levels, which are associated with breast cancer (BC) mortality. [...]
2020 - 10.1186/s12885-020-07289-z
BMC Cancer, Vol. 20 Núm. 1 (24 2020) , p. 795
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8 p, 331.8 KB |
Assessment of the quality of recommendations from 161 clinical practice guidelines using the Appraisal of Guidelines for Research and Evaluation-Recommendations Excellence (AGREE-REX) instrument shows there is room for improvement
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Florez, Ivan D (McMaster University (Canadà)) ;
Brouwers, M.C. (University of Ottawa) ;
Kerkvliet, K. (McMaster University (Canadà)) ;
Spithoff, K. (McMaster University (Canadà)) ;
Alonso-Coello, Pablo (Institut d'Investigació Biomèdica Sant Pau) ;
Burgers, J. (Dutch College of General Practitioners) ;
Cluzeau, F. (St. Mary's Hospital) ;
Férvers, B. (Centre Léon Bérard) ;
Graham, I. (University of Ottawa) ;
Grimshaw, J. (University of Ottawa) ;
Hanna, S. (McMaster University (Canadà)) ;
Kastner, M. (North York General Hospital) ;
Kho, M. (Institute of Applied Health Sciences McMaster University) ;
Qaseem, Amir (American College of Physicians) ;
Straus, S. (Li Ka Shing Knowledge Institute of St. Michael's Hospital) ;
Universitat Autònoma de Barcelona
To assess the quality of recommendations from 161 clinical practice guidelines (CPGs) using AGREE-REX-D (Appraisal of Guidelines REsearch and Evaluation-Recommendations Excellence Draft). International CPG community. [...]
2020 - 10.1186/s13012-020-01036-5
Implementation Science, Vol. 15 Núm. 1 (18 2020) , p. 79
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22 p, 521.1 KB |
Early diagnosis and better rhythm management to improve outcomes in patients with atrial fibrillation : the 8th AFNET/EHRA consensus conference
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Schnabel, Renate B ;
Marinelli, Elena Andreassi ;
Arbelo, Elena (Hospital Clínic i Provincial de Barcelona) ;
Boriani, Giuseppe ;
Boveda, Serge ;
Buckley, Claire M ;
Camm, A John ;
Casadei, Barbara ;
Chua, Winnie ;
Dagres, Nikolaos ;
de Melis, Mirko ;
Desteghe, Lien ;
Diederichsen, Søren Zöga ;
Duncker, David ;
Eckardt, Lars ;
Eisert, Christoph ;
Engler, Daniel ;
Fabritz, Larissa ;
Freedman, Ben ;
Gillet, Ludovic ;
Goette, Andreas ;
Guasch, Eduard (Hospital Clínic i Provincial de Barcelona) ;
Svendsen, Jesper Hastrup ;
Hatem, Stéphane N ;
Haeusler, Karl Georg ;
Healey, Jeff S ;
Heidbuchel, Hein ;
Hindricks, Gerhard ;
Hobbs, F D Richard ;
Hübner, Thomas ;
Kotecha, Dipak ;
Krekler, Michael ;
Leclercq, Christophe ;
Lewalter, Thorsten ;
Lin, Honghuang ;
Linz, Dominik ;
Lip, Gregory Y H ;
Løchen, Maja Lisa ;
Lucassen, Wim ;
Malaczynska-Rajpold, Katarzyna ;
Massberg, Steffen ;
Merino, Jose L ;
Meyer, Ralf ;
Mont, Lluıs ;
Myers, Michael C ;
Neubeck, Lis ;
Niiranen, Teemu ;
Oeff, Michael ;
Oldgren, Jonas ;
Potpara, Tatjana S ;
Psaroudakis, George ;
Pürerfellner, Helmut ;
Ravens, Ursula ;
Rienstra, Michiel ;
Rivard, Lena ;
Scherr, Daniel ;
Schotten, Ulrich ;
Shah, Dipen ;
Sinner, Moritz F ;
Smolnik, Rüdiger ;
Steinbeck, Gerhard ;
Steven, Daniel ;
Svennberg, Emma ;
Thomas, Dierk ;
True Hills, Mellanie ;
van Gelder, Isabelle C ;
Vardar, Burcu ;
Palà, Elena ;
Wakili, Reza ;
Wegscheider, Karl (Hospital Universitari Vall d'Hebron) ;
Wieloch, Mattias ;
Willems, Stephan ;
Witt, Henning ;
Ziegler, André ;
Daniel Zink, Matthias ;
Kirchhof, Paulus ;
Universitat Autònoma de Barcelona
Despite marked progress in the management of atrial fibrillation (AF), detecting AF remains difficult and AF-related complications cause unacceptable morbidity and mortality even on optimal current therapy. [...]
2022 - 10.1093/europace/euac062
Europace, Vol. 25 (july 2022) , p. 6-27
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10 p, 444.6 KB |
Assessing the outcomes and experiences of care from the perspective of people living with chronic conditions, to support countries in developing people-centred policies and practices : study protocol of the International Survey of People Living with Chronic Conditions (PaRIS survey)
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de Boer, Dolf (Netherlands Institute for Health Services Research (NIVEL)) ;
van den Berg, Michael (Organisation for Economic Co-operation and Development (França)) ;
Ballester, Marta (Universitat Autònoma de Barcelona. Institut Universitari Avedis Donabedian) ;
Bloemeke, Janika (Optimedis) ;
Boerma, Wienke (Netherlands Institute for Health Services Research (NIVEL)) ;
de Bienassis, Katherine (Organisation for Economic Co-operation and Development) ;
Groenewegen, Peter (Utrecht University) ;
Groene, Oliver (Optimedis) ;
Kendir, Candan (Organisation for Economic Co-operation and Development) ;
Klazinga, Niek (Organisation for Economic Co-operation and Development) ;
Porter, Ian (University of Exeter Medical School) ;
Suñol Sala, Rosa (Universitat Autònoma de Barcelona. Institut Universitari Avedis Donabedian) ;
Thomas, Laura (Ipsos MORI (Regne Unit)) ;
Valderas, Jose Maria (National University Health System) ;
Williams, Rachel (Ipsos MORI UK Ltd) ;
Rijken, Mieke (University of Eastern Finland)
In view of growing populations with chronic conditions, many countries are redesigning their health systems. However, little information is available about how health systems perform from the perspective of people living with chronic conditions. [...]
2022 - 10.1136/bmjopen-2022-061424
BMJ open, Vol. 12 (september 2022)
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10 p, 457.9 KB |
Health-related quality of life in older patients surviving ICU treatment for COVID-19 : results from an international observational study of patients older than 70 years
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Soliman, Ivo W. ;
Leaver, Susannah ;
Flaatten, Hans ;
Fjølner, Jesper ;
Wernly, Bernhard ;
Bruno, Raphael Romano ;
Artigas Raventós, Antoni (Parc Taulí Hospital Universitari. Institut d'Investigació i Innovació Parc Taulí (I3PT)) ;
Bollen Pinto, Bernardo ;
Schefold, Joerg C. ;
Beil, Michael ;
Sviri, Sigal ;
van Heerden, Peter Vernon ;
Szczeklik, Wojciech ;
Elhadi, Muhammed ;
Joannidis, Michael ;
Oeyen, Sandra ;
Zafeiridis, Tilemachos ;
Wollborn, Jakob ;
Banzo, Maria Jose Arche ;
Fuest, Kristina ;
Marsh, Brian ;
Andersen, Finn H. ;
Moreno, Rui ;
Boumendil, Ariane ;
Guidet, Bertrand ;
Jung, Christian ;
De Lange, Dylan W.. ;
Universitat Autònoma de Barcelona
health-related quality of life (HRQoL) is an important patient-centred outcome in patients surviving ICU admission for COVID-19. It is currently not clear which domains of the HRQoL are most affected. [...]
2022 - 10.1093/ageing/afab278
Age and Ageing, Vol. 51 (february 2022)
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