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28 p, 397.3 KB |
EAU-EANM-ESTRO-ESUR-SIOG Prostate Cancer Guideline Panel Consensus Statements for Deferred Treatment with Curative Intent for Localised Prostate Cancer from an International Collaborative Study (DETECTIVE Study)
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Lam, Thomas B.L. (Aberdeen Royal Infirmary) ;
MacLennan, Steven (University of Aberdeen) ;
Willemse, Peter-Paul M. (University Medical Center Utrecht) ;
Mason, Malcolm D. (Velindre Cancer Centre) ;
Plass, Karin (EAU Guidelines Office) ;
Shepherd, Robert (EAU Guidelines Office) ;
Baanders, Ruud ;
Bangma, Chris H. (Erasmus University Medical Centre) ;
Bjartell, Anders (Lund University) ;
Bossi, Alberto (Gustave Roussy Institute) ;
Briers, Erik ;
Briganti, Alberto (IRCCS Ospedale San Raffaele (Milà, Itàlia)) ;
Buddingh, Karel T. (HagaZiekenhuis) ;
Catto, James W.F. (Royal Hallamshire Hospital) ;
Colecchia, Maurizio (Fondazione IRCCS Istituto Nazionale dei Tumori di Milano) ;
Cox, Brett W. (Zucker School of Medicine) ;
Cumberbatch, Marcus G. (University of Sheffield) ;
Davies, Jeff ;
Davis, Niall F. (Royal College of Surgeons in Ireland) ;
De Santis, Maria (Charité University Hospital) ;
Dell'Oglio, Paolo (ORSI Academy) ;
Deschamps, André (Europa Uomo) ;
Donaldson, James F. (Aberdeen Royal Infirmary) ;
Egawa, Shin (Jikei University School of Medicine) ;
Fankhauser, Christian D. (University of Zurich) ;
Fanti, Stefano (University of Bologna) ;
Fossati, Nicola (Scientific Institute and University Vita-Salute San Raffaele Hospital) ;
Gandaglia, Giorgio (IRCCS Ospedale San Raffaele) ;
Gillessen, Silke (University of Bern) ;
Grivas, Nikolaos (The Netherlands Cancer Institute (Amsterdam, Països Baixos)) ;
Gross, Tobias (University of Bern) ;
Grummet, Jeremy P. (Monash University) ;
Henry, Ann M. (St. James's University Hospital) ;
Ingels, Alexandre (Henri Mondor Hospital) ;
Irani, Jacques (University Hospital of Bicêtre-Paris Sud-Saclay University) ;
Lardas, Michael (Department of Reconstructive Urology and Surgical Andrology) ;
Liew, Matthew (Wigan and Leigh NHS Foundation Trust) ;
Lin, Daniel W. (University of Washington) ;
Moris, Lisa (KU Leuven) ;
Omar, Muhammad Imran (University of Aberdeen) ;
Pang, Karl H. (University of Sheffield) ;
Paterson, Catherine C. (Robert Gordon University) ;
Renard-Penna, Raphaële (Sorbonne Université) ;
Ribal, María J. (Hospital Clínic i Provincial de Barcelona) ;
Roobol, M.J. (Erasmus University Medical Centre) ;
Rouprêt, Morgan (Sorbonne Université) ;
Rouvière, Olivier (Université de Lyon) ;
Sancho-Pardo, Gemma (Institut d'Investigació Biomèdica Sant Pau) ;
Richenberg, Jonathan (Royal Sussex County Hospital Brighton and Brighton and Sussex Medical School) ;
Schoots, Ivo G. (Erasmus University Medical Center) ;
Sedelaar, J.P.Michiel (Radboud University Medical Centre) ;
Stricker, Phillip (Garvan Institute of Research) ;
Tilki, Derya (University Hospital Hamburg-Eppendorf) ;
Vahr Lauridsen, Susanne (Copenhagen University Hospital) ;
van den Bergh, Roderick C.N. (St. Antonius Hospital) ;
Van den Broeck, Thomas (University Hospitals Leuven (Bèlgica)) ;
van der Kwast, Theodorus H. (Erasmus University Medical Center) ;
van der Poel, Henk G. (The Netherlands Cancer Institute (Amsterdam, Països Baixos)) ;
van Leenders, Geert J.L.H. (Erasmus University Medical Center) ;
Varma, Murali (University Hospital of Wales) ;
Violette, Philippe D. (McMaster University (Canadà)) ;
Wallis, Christopher J.D. (Vanderbilt University Medical Center) ;
Wiegel, Thomas (University Hospital of Ulm (Alemanya)) ;
Wilkinson, Karen (University College London Hospitals) ;
Zattoni, Fabio (Academic Medical Centre Hospital) ;
N'Dow, James M.O. (Aberdeen Royal Infirmary) ;
Van Poppel, Hendrik (University Hospitals Leuven (Bèlgica)) ;
Cornford, Philip (Royal Liverpool and Broadgreen Hospitals NHS Trust) ;
Mottet, Nicolas (University Hospital Jean Monnet) ;
Universitat Autònoma de Barcelona
There is uncertainty in deferred active treatment (DAT) programmes, regarding patient selection, follow-up and monitoring, reclassification, and which outcome measures should be prioritised. To develop consensus statements for all domains of DAT. [...]
2019 -  10.1016/j.eururo.2019.09.020
European Urology, Vol. 76 Núm. 6 (december 2019) , p. 790-813
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9 p, 215.1 KB |
Challenges in Transition From Childhood to Adulthood Care in Rare Metabolic Diseases : Results From the First Multi-Center European Survey
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Stepien, Karolina M. (Adult Inherited Metabolic Diseases, Salford Royal NHS Foundation Trust) ;
Kieć-Wilk, Beata (Department of Metabolic Diseases, Medical College, Jagiellonian University) ;
Lampe, Christina (Department of Child Neurology, Center for Rare Diseases Giessen (ZSEGI), Justus-Liebig University) ;
Tangeraas, Trine (Oslo University Hospital (Oslo, Noruega)) ;
Cefalo, Graziella (Department of Maternal and Child Health, San Paolo Hospital, University of Milan, ASST Santi Paolo e Carlo) ;
Belmatoug, Nadia (Referral Center for Lysosomal Diseases, AP-HP Nord, Beaujon Hospital, Paris University) ;
Francisco, Rita (Portuguese Association for Congenital Disorders of Glycosylation and other Rare Metabolic Diseases) ;
Del Toro, Mireia (Hospital Universitari Vall d'Hebron) ;
Wagner, Leona (German-Speaking Self-Help Group for Alkaptonuria (DSAKU) e.V) ;
Lauridsen, Anne-Grethe (Gaucher Association Denmark) ;
Sestini, Sylvia (Italian Association of Patients With Alkaptonuria (aimAKU)) ;
Weinhold, Nathalie (Metabolic Unit, Interdisciplinary Centre for Metabolism: Endocrinology, Diabetes and Metabolism (UP) and Children's Hospital, Charité University Hospital Berlin) ;
Hahn, Andreas (Department of Child Neurology, Justus-Liebig University) ;
Montanari, Chiara (Department of Maternal and Child Health, San Paolo Hospital, University of Milan, ASST Santi Paolo e Carlo) ;
Rovelli, Valentina (Department of Maternal and Child Health, San Paolo Hospital, University of Milan, ASST Santi Paolo e Carlo) ;
Bellettato, Cinzia M. (MetabERN, Regional Coordinating Center for Rare Diseases, Udine University Hospital) ;
Paneghetti, Laura (MetabERN, Regional Coordinating Center for Rare Diseases, Udine University Hospital) ;
van Lingen, Corine (MetabERN, Regional Coordinating Center for Rare Diseases, Udine University Hospital) ;
Scarpa, Maurizio (MetabERN, Regional Coordinating Center for Rare Diseases, Udine University Hospital) ;
Universitat Autònoma de Barcelona
Inherited Metabolic Diseases (IMDs) are rare diseases caused by genetic defects in biochemical pathways. Earlier diagnosis and advances in treatment have improved the life expectancy of IMD patients over the last decades, with the majority of patients now surviving beyond the age of 20. [...]
2021 - 10.3389/fmed.2021.652358
Frontiers in Medicine, Vol. 8 (february 2021)
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