REINVENT : ERS International survey on REstrictive thoracic diseases IN long term home noninvasive VENTilation
Pierucci, Paola ("Aldo Moro" Bari University School of Medicine)
Crimi, Claudia ("Policlinico-Vittorio Emanuele San Marco" University Hospital)
Carlucci, Annalisa (Università Insubria Varese-Como)
Carpagnano, Giovanna E. ("Aldo Moro" Bari University School of Medicine)
Janssens, Jean-Paul (Geneva University Hospitals (Suïssa))
Luján, Manel (Parc Taulí Hospital Universitari. Institut d'Investigació i Innovació Parc Taulí (I3PT))
Noto, Alberto (IPCF-CNR, Institute for Chemical and Physical Processes, National Research Council, Messina, Italy)
Wijkstra, Peter J. (University of Groningen)
Windisch, Wolfram (Cologne Merheim Hospital)
Scala, Raffaele (S Donato Hospital)
Universitat Autònoma de Barcelona

Fecha:	2021
Resumen:	Little is known about the current use of long-term home noninvasive ventilation (LTHNIV) in restrictive thoracic diseases, including chest wall disorders and neuromuscular disorders (NMD). This study aimed to capture the pattern of LTHNIV in patients with restrictive thoracic diseases via a web-based international survey. The survey involved European Respiratory Society (ERS) Assembly 2. 02 (NIV-dedicated group), from October to December 2019. 166 (22. 2%) out of 748 members from 41 countries responded; 80% were physicians, of whom 43% worked in a respiratory intermediate intensive care unit. The ratio of NMD to chest wall disorders was 5:1, with amyotrophic lateral sclerosis the most frequent indication within NMD (78%). The main reason to initiate LTHNIV was diurnal hypercapnia (71%). Quality of life/sleep was the most important goal to achieve. In 25% of cases, clinicians based their choice of the ventilator on patients' feedback. Among NIV modes, spontaneous-timed pressure support ventilation (ST-PSV) was the most frequently prescribed for day- and night-time. Mouthpieces were the preferred daytime NIV interface, whereas oro-nasal masks the first choice overnight. Heated humidification was frequently added to LTHNIV (72%). Single-limb circuits with intentional leaks (79%) were the most frequently prescribed. Follow-up was most often provided in an outpatient setting. This ERS survey illustrates physicians' practices of LTHNIV in patients with restrictive thoracic diseases. NMD and, specifically, amyotrophic lateral sclerosis were the main indications for LTHNIV. NIV was started mostly because of diurnal hypoventilation with a primary goal of patient-centred benefits. Bi-level ST-PSV and oro-nasal masks were more likely to be chosen for providing NIV. LTHNIV efficacy was assessed mainly in an outpatient setting. For the first time since EUROVENT, the REINVENT survey of @EuroRespSoc members expert in noninvasive (NIV) ventilatory support illustrates physicians' practices of long-term home NIV in restrictive thoracic disorder patients.
Derechos:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, sempre que no sigui amb finalitats comercials, i sempre que es reconegui l'autoria de l'obra original.
Lengua:	Anglès
Documento:	Article ; recerca ; Versió publicada
Publicado en:	ERJ Open Research, Vol. 7 (april 2021) , ISSN 2312-0541

DOI: 10.1183/23120541.00911-2020
PMID: 33898619

10 p, 741.3 KB

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Documentos de investigación > Documentos de los grupos de investigación de la UAB > Centros y grupos de investigación (producción científica) > Ciencias de la salud y biociencias > Instituto de Investigación e Innovación Parc Taulí (I3PT)
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