Palliative Oncological Patients with Insomnia : Concerns of the Patients and Their Relatives' Perception
Font Guiteras, Antoni (Universitat Autònoma de Barcelona. Departament de Psicologia Bàsica, Evolutiva i de l'Educació)
Planas Domingo, José (Hospital del Mar (Barcelona, Catalunya))
Danés, Cristina Farriols (Hospital del Mar (Barcelona, Catalunya))
Ripoll, Ada Ruiz (Hospital del Mar (Barcelona, Catalunya))
Berger, Rita (Universitat de Barcelona. Departament de Psicologia Social i Psicologia Quantitativa)
Villar Abelló, Helena (Universitat Autònoma de Barcelona. Departament de Psicologia Bàsica, Evolutiva i de l'Educació)

Date:	2021
Abstract:	Insomnia is one of the most frequent symptoms and usually generates significant stress in 60% of patients with advanced cancer. Worries from the patients' and relatives' perspective are crucial to improve the patients' quality of life but have received limited attention. The aims were to identify the concerns of patients with insomnia in the terminal illness stage in a palliative care unit and the relatives' perception, and to compare both. Here, 63 patients and 53 relatives answered a questionnaire about worries in the personal, spiritual, family-related and economic area, as well as a quality-of-life uniscale. The results showed that the relatives' most frequent concern was "Having lived life to the fullest" (100%), and the most intense was "The possible suffering during the process" (9. 2/10). The patients' most expressed concern was: "Having unfinished business" (100%), and the most intense was "Suffering during the process" (9. 3/10). Quality of life showed an average value of 6. 95 out of 10. Relatives only coincided significantly in: "Not knowing what happens after death" (r = 0. 600; p = 0. 000). These results bring visibility to concerns during the final stage of oncological palliative patients with insomnia from the patients' and relatives' perspective. Knowing both is useful for professionals to foster the well-being for a short, yet very important, period for patients, relatives and the caregiving team.
Note:	Ajuts: : The financing for this project was obtained through the Nando Peretti Foundation Project number 2008-05
Rights:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, fins i tot amb finalitats comercials, sempre i quan es reconegui l'autoria de l'obra original.
Language:	Anglès
Document:	Article ; recerca ; Versió publicada
Subject:	Palliative care ; Insomnia ; Concerns ; Terminal cancer ; Primary caregiver
Published in:	International journal of environmental research and public health, Vol. 18 (august 2021) , ISSN 1660-4601

DOI: 10.3390/ijerph18168509
PMID: 34444258

10 p, 343.6 KB

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