Migraine-attributed burden, impact and disability, and migraine-impacted quality of life : Expert consensus on definitions from a Delphi process
Steiner, Timothy J (Imperial College London)
Terwindt, Gisela M (Leiden University Medical Center)
Katsarava, Zaza (EVEX Medical Corporation (Georgia))
Pozo-Rosich, Patricia (Hospital Universitari Vall d'Hebron. Institut de Recerca)
Gantenbein, Andreas R (University Hospital Zurich (Suïssa))
Roche, Sarah L (Eli Lilly and Company)
Dell'Agnello, Grazia (Eli Lilly Italia SpA)
Tassorelli, Cristina (IRCCS Mondino Foundation)
Universitat Autònoma de Barcelona

Fecha:	2022
Resumen:	Migraine-attributed burden, impact, disability and migraine-impacted quality of life are important concepts in clinical management, clinical and epidemiological research, and health policy, requiring clear and agreed definitions. We aimed to formulate concise and precise definitions of these concepts by expert consensus. We searched the terms migraine-attributed burden, impact, disability and migraine-impacted quality of life in Embase and Medline from 1974 and 1946 respectively. We followed a Delphi process to reach consensus on definitions. We found widespread conflation of concepts and inconsistent terminology within publications. Following three Delphi rounds, we defined migraine-attributed burden as "the summation of all negative consequences of the disease or its diagnosis"; migraine-attributed impact as "the effect of the disease, or its diagnosis, on a specified aspect of life, health or wellbeing"; migraine-attributed disability as "physical, cognitive and mental incapacities imposed by the disease"; and migraine-impacted quality of life as "the subjective assessment by a person with the disease of their general wellbeing, position and prospects in life". We complemented each definition with a detailed description. These definitions and descriptions should foster consistency and encourage more appropriate use of currently available quantifying instruments and aid the future development of others.
Derechos:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, sempre que no sigui amb finalitats comercials, i sempre que es reconegui l'autoria de l'obra original.
Lengua:	Anglès
Documento:	Article ; recerca ; Versió publicada
Materia:	Migraine ; Burden ; Impact ; Disability ; Quality of life ; Definitions ; Delphi ; Expert consensus
Publicado en:	Cephalalgia, Vol. 42 (july 2022) , p. 1387-1396, ISSN 1468-2982

DOI: 10.1177/03331024221110102
PMID: 35791285

10 p, 705.8 KB

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