Transitional Care for Young People with Movement Disorders : Recommendations from the Task Force on Pediatrics
Pringsheim, Tamara (University of Calgary)
Batla, Amit (UCL Institute of Neurology (Regne Unit))
Shalash, Ali (Ain Shams Univeristy)
Sahu, Jitendra Kumar (Postgraduate Institute of Medical Education and Research)
Cosentino, Carlos (Universidad Nacional Mayor de San Marcos (Lima, Perú))
Ebrahimi-Fakhari, Darius (Harvard Medical School)
Friedman, Jennifer (UC San Diego)
Lin, Jean-Pierre (King's College London)
Mink, Jonathan (University of Rochester)
Munchau, Alexander (Institute of Systems Motor Science)
Munoz, Daniela (San Borja Arriaran Hospital)
Nardocci, Nardo (Fondazione IRCCS Istituto Neurologico "C Besta")
Pérez-Dueñas, Belén (Hospital Universitari Vall d'Hebron)
Sardar, Zomer (Columbia University Irving Medical Center/New York Presbyterian Hospital)
Triki, Chahnez (University of Sfax Tunisia)
Ben-Pazi, Hilla (Movement Disorders Clinic)
Silveira-Moriyama, Laura (University of Campinas)
Troncoso-Schifferli, Monica (San Borja Arriaran Hospital)
Hoshino, Kyoko (Segawa Memorial Neurological Clinic for Children)
Dale, Russell C. (University of Sydney)
Fung, Victor S.C. (University of Sydney)
Kurian, Manju A. (Zayed Centre for Research into Rare Disease in Children)
Roze, Emmanuel (Sorbonne University)
Universitat Autònoma de Barcelona

Date:	2023
Abstract:	The International Parkinson and Movement Disorders Society (MDS) set up a working group on pediatric movement disorders (MDS Task Force on Pediatrics) to generate recommendations to guide the transition process from pediatrics to adult health care systems in patients with childhood-onset movement disorders. To develop recommendations for transitional care for childhood onset movement disorders, we used a formal consensus development process, using a multi-round, web-based Delphi survey. The Delphi survey was based on the results of the scoping review of the literature and the results of a survey of MDS members on transition practices. Through iterative discussions, we generated the recommendations included in the survey. The MDS Task Force on Pediatrics were the voting members for the Delphi survey. The task force members comprise 23 child and adult neurologists with expertise in the field of movement disorders and from all regions of the world. Fifteen recommendations divided across four different areas were made pertaining to: (1) team composition and structure, (2) planning and readiness, (3) goals of care, and (4) administration and research. All recommendations achieved consensus with a median score of 7 or greater. Recommendations on providing transitional care for patients with childhood onset movement disorders are provided. Nevertheless several challenges remain in the implementation of these recommendations, related to health infrastructure and the distribution of health resources, and the availability of knowledgeable and interested practitioners. Research on the influence of transitional care programs on outcomes in childhood onset movement disorders is much needed.
Rights:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, fins i tot amb finalitats comercials, sempre i quan es reconegui l'autoria de l'obra original.
Language:	Anglès
Document:	Article ; recerca ; Versió publicada
Published in:	Movement Disorders Clinical Practice, Vol. 10 (april 2023) , p. 748-755, ISSN 2330-1619

DOI: 10.1002/mdc3.13728
PMID: 37205244

8 p, 557.3 KB

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