Parent-child agreement on health-related quality of life (HRQOL) : a longitudinal study
Rajmil, Luis (Institut Hospital del Mar d'Investigacions Mèdiques)
López, Amanda Rodríguez (Institut Hospital del Mar d'Investigacions Mèdiques)
López-Aguilà, Sílvia (Agència de Qualitat i Avaluació Sanitàries de Catalunya)
Alonso, Jordi (Institut Hospital del Mar d'Investigacions Mèdiques)
Universitat Autònoma de Barcelona

Date:	2013
Abstract:	Few studies have evaluated changes on parent-child agreement in HRQOL over time. The objectives of the study were to assess parent-child agreement on child's HRQOL in a 3-year longitudinal study, and to identify factors associated with possible disagreement. A sample of Spanish children/adolescents aged 8-18 years and their parents both completed the KIDSCREEN-27 questionnaire. Data on age, gender, family socioeconomic status (SES), and mental health (Strengths and Difficulties Questionnaire, SDQ) was also collected at baseline (2003), and again after 3 years (2006). Changes in family composition were collected at follow-up. Agreement was assessed through intraclass correlation coefficient (ICC), and Bland and Altman plots. Generalizing Estimating Equation (GEE) models were built to analyze factors associated with parent-child disagreement. A total of 418 parent-child pairs were analyzed. At baseline the level of agreement on HRQOL was low to moderate and it was related to the level of HRQOL reported. Physical well-being at baseline showed the highest level of parent-child agreement (ICC=0. 59; 0. 53-0. 65) while less "observable" dimensions presented lower levels of agreement, (i. e. Psychological well-being: ICC= 0. 46; 0. 38-0. 53). Agreement parent-child was lower at follow-up. Some interactions were found between rater and child's age; with increasing age, child scored lower than parents on Parents relationships and Autonomy (Beta [B] -0. 47; -0. 71 / -0. 23) and the KIDSCREEN-10 (−0. 49; -0. 73 /-0. 25). Parent-child agreement on child's HRQOL is moderate to low and tends to diminish with children age. Measuring HRQOL of children/adolescents mainly in healthy population samples might require direct self-assessments.
Note:	Altres ajuts: MISSSI/PI042504
Note:	Altres ajuts: MISSSI/PI042315
Rights:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, fins i tot amb finalitats comercials, sempre i quan es reconegui l'autoria de l'obra original.
Language:	Anglès
Document:	Article ; recerca ; Versió publicada
Subject:	Adolescents ; Health-related quality of life ; Longitudinal studies ; Parent-child agreement ; Proxy
Published in:	Health and quality of life outcomes, Vol. 11 (june 2013) , p. 101, ISSN 1477-7525

DOI: 10.1186/1477-7525-11-101
PMID: 23786901

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