Enhancing support for patients with low anterior resection syndrome : insights and educational resources from the LARSCAT project
Ribas, Y. (Consorci Sanitari de Terrassa)
Muñoz-Duyos, A. (Hospital de Sant Joan Despí Moisès Broggi)
Franquet, M. (Patient Author)
Guerreiro, I. (Patient Author)
Perau, J. (Patient Author)
Porras, O. (Patient Author)
Rodríguez, D. (Patient Author)
Rojo, J. (Patient Author)
Ramírez, L. (Hospital de la Santa Creu i Sant Pau (Barcelona, Catalunya))
Rubio, M. (Hospital de la Santa Creu i Sant Pau (Barcelona, Catalunya))
Marinello, Franco (Hospital Universitari Vall d'Hebron)
Jiménez-Toscano, Marta (Hospital del Mar (Barcelona, Catalunya))
Romero, C. (Consorci Sanitari de Terrassa)
Universitat Autònoma de Barcelona

Fecha:	2024
Resumen:	Purpose: To address the educational gaps and support needs of patients with low anterior resection syndrome (LARS) following rectal cancer surgery. The LARSCAT project aimed to develop comprehensive resources to better inform patients and enhance their quality of life. Methods: A qualitative study was conducted between November 2022 and March 2023. Seven focus groups were formed, including six patients, two surgeons, and three nurses. Patients had undergone rectal cancer surgery with stoma reversal 2 to 12 years earlier, and all experienced major LARS. The focus groups, held in-person and online, explored the impact on daily life, social and sexual health, mood, rest, and relationships. Thematic analysis was performed to identify key issues and support strategies following the COREQ guidelines. Results: Participants reported insufficient information regarding potential dysfunctions after rectal cancer surgery, and difficulties finding reliable information online. The timing of receiving information varied according to individual coping mechanisms. LARS symptoms significantly impacted daily life, social activities, sexual health, and mood. Patients emphasised the need for more tailored information and supplementary written materials to read at their own pace. Consequently, three comprehensive documents were created and made available online. Conclusion: This study highlights a significant gap in patient education on the long-term effects of rectal cancer surgery. The resources developed by the LARSCAT project aim to provide essential support to patients and healthcare professionals. Future research should focus on integrating these resources into routine care and evaluating their impact on patient outcomes and quality of life.
Derechos:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, i la comunicació pública de l'obra, sempre que no sigui amb finalitats comercials, i sempre que es reconegui l'autoria de l'obra original. No es permet la creació d'obres derivades.
Lengua:	Anglès
Documento:	Article ; recerca ; Versió publicada
Materia:	Bowel dysfunction ; Low anterior resection syndrome ; Patient education ; Quality of life ; Rectal cancer ; Support resources
Publicado en:	International Journal of Colorectal Disease, Vol. 39 Núm. 1 (december 2024) , p. 196, ISSN 1432-1262

DOI: 10.1007/s00384-024-04775-9
PMID: 39633202

8 p, 813.3 KB

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