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11 p, 665.2 KB Current Transition Practice for Primary Immunodeficiencies and Autoinflammatory Diseases in Europe : a RITA-ERN Survey / Israni, Muskan (Royal Free London NHS Foundation Trust) ; Nicholson, Bethany (Royal Free London NHS Foundation Trust) ; Mahlaoui, Nizar (Necker Enfants Malades University Hospital) ; Obici, Laura (Fondazione IRCCS Policlinico San Matteo) ; Rossi-Semerano, Linda (Assistance Publique-Hôpitaux de Paris (AP-HP)) ; Lachmann, Helen (University College London) ; Hayward, Georgia (Chapel Allerton Hospital) ; Avramovič, Mojca Zajc (University Children's Hospital Ljubljana) ; Guffroy, Aurelien (Université de Strasbourg) ; Dalm, Virgil (Erasmus University Medical Center) ; Rimmer, Rachel (Rare Autoinflammatory Conditions Community - UK) ; Solis, Leire (International Patient Organisation for Primary Immunodeficiencies (IPOPI)) ; Villar, Carlotta (Barcelona PID Foundation) ; Gennery, Andrew R. (Newcastle University) ; Skeffington, Stephanie (Irish Vasculitis Organisation) ; Nordin, Julia (International Patient Organisation for Primary Immunodeficiencies (IPOPI)) ; Warnatz, Klaus (University of Freiburg) ; Korganow, Anne-Sophie (Université de Strasbourg) ; Antón, Jordi (Hospital Sant Joan de Déu (Barcelona, Catalunya)) ; Cattalini, Marco (University of Brescia) ; Amin, Tania (Leeds Children's Hospital) ; Berg, Stephan (Queen Silvia Children's Hospital) ; Soler-Palacín, Pere (Hospital Universitari Vall d'Hebron) ; Burns, Siobhan (University College London Institute of Immunity and Transplantation) ; Campbell, Mari (University College London Institute of Immunity and Transplantation) ; Universitat Autònoma de Barcelona
Due to the absence of curative treatments for inborn errors of immunity (IEI), children born with IEI require long-term follow-up for disease manifestations and related complications that occur over the lifespan. [...]
2022 - 10.1007/s10875-022-01345-y
Journal of Clinical Immunology, Vol. 43 (october 2022) , p. 206-216  
Detailed record - Creative Commons

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