Still Fighting for Breath : a patient survey of the challenges and impact of severe asthma
Katsaounou, Paraskevi (First ICU Evaggelismos Hospital, National and Kapodistrian University of Athens, Athens, Greece)
Odemyr, Mikaela (European Federation of Allergy and Airways Diseases Patients' Associations, Brussels, Belgium)
Spranger, Otto (Global Allergy and Asthma Patient Platform, Vienna, Austria)
Hyland, Michael E. (School of Psychology, University of Plymouth, Plymouth, UK)
Kroegel, Claus (Jena University Hospital (Alemanya))
Conde, Lorena Garcia (Novartis Pharma AG, Basel, Switzerland)
Gore, Robin (Addenbrookes Hospital (Cambridge, Regne Unit))
Menzella, Francesco (Specialist Medicine Dept, Pneumology Unit, Arcispedale Santa Maria Nuova, Reggio Emilia, Italy)
Domingo, Christian (Universitat Autònoma de Barcelona. Departament de Medicina)
Morais-Almeida, Mario (Allergy Center, CUF Descobertas Hospital, Lisbon, Portugal)
Gasser, Matthias (GfK Switzerland AG, Basel, Switzerland)
Kasujee, Ismail (Novartis Pharma AG, Basel, Switzerland)

Data:	2018
Resum:	We conducted a large global survey, Still Fighting for Breath, in patients with severe persistent asthma, 10 years after the Fighting for Breath survey to assess the impact of disease on patients' lives and to determine if control and management have changed in recent years. Data were collected from 1333 adults (aged >18 years) and caregivers of children (aged 6-17 years) with severe persistent asthma from nine countries through an online survey conducted in 2016 by GfK. A decade after the first survey, our results showed that the impact of severe asthma has not changed significantly and a high proportion of patients with severe asthma remain inadequately controlled. A large discrepancy was observed between the proportion of patients who perceived their asthma to be well controlled (42%) and the proportion of patients who reported to be well controlled as per the Global Initiative for Asthma (GINA) assessment (6%). Although most patients perceived their asthma to be controlled, many experienced frequent symptoms that affected their daily lives. Thus, there is a need for improved management (support and strategies) of patients with severe persistent asthma and improved coordination of efforts that would enable these patients to achieve better disease control. There is a need for improved management of patients with severe persistent asthma to achieve better disease control.
Drets:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, sempre que no sigui amb finalitats comercials, i sempre que es reconegui l'autoria de l'obra original.
Llengua:	Anglès
Document:	Article ; recerca ; Versió publicada
Publicat a:	ERJ Open Research, Vol. 4 (december 2018) , ISSN 2312-0541

DOI: 10.1183/23120541.00076-2018
PMID: 30588481
PMID: 29450201

9 p, 571.3 KB

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