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10 p, 964.4 KB Evaluating quality of life in pediatric palliative care : a cross-sectional analysis of children's and parents' perspectives / Toro-Pérez, Daniel (Universitat Autònoma de Barcelona) ; Limonero García, Joaquim T. (Joaquim Timoteo) (Universitat Autònoma de Barcelona) ; Guillén, Montserrat (Universitat de Barcelona. Departament d'Econometria) ; Bolancé, Catalina (Universitat de Barcelona. Departament d'Econometria) ; Vilarrubí, S.N. (Catalan Society of Pediatrics) ; Camprodon-Rosanas, Ester (Hospital Sant Joan de Déu (Barcelona, Catalunya))
The patient's perspective is an essential component of understanding the individual experience of suffering in children with palliative needs, but it is a perspective that is often overlooked. The aim of this study was to compare the perception of quality of life (QoL) of children with life-limiting and life-threatening conditions expressed by the children themselves and their parents. [...]
2023 - 10.1007/s00431-023-05330-4
European Journal of Pediatrics, 2023  

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