Challenges in Transition From Childhood to Adulthood Care in Rare Metabolic Diseases : Results From the First Multi-Center European Survey - Stepien, Karolina M. (Adult Inherited Metabolic Diseases, Salford Royal NHS Foundation Trust) ; Kieć-Wilk, Beata (Department of Metabolic Diseases, Medical College, Jagiellonian University) ; Lampe, Christina (Department of Child Neurology, Center for Rare Diseases Giessen (ZSEGI), Justus-Liebig University) ; Tangeraas, Trine (Oslo University Hospital (Oslo, Noruega)) ; Cefalo, Graziella (Department of Maternal and Child Health, San Paolo Hospital, University of Milan, ASST Santi Paolo e Carlo) ; Belmatoug, Nadia (Referral Center for Lysosomal Diseases, AP-HP Nord, Beaujon Hospital, Paris University) ; Francisco, Rita (Portuguese Association for Congenital Disorders of Glycosylation and other Rare Metabolic Diseases) ; Del Toro, Mireia (Hospital Universitari Vall d'Hebron) ; Wagner, Leona (German-Speaking Self-Help Group for Alkaptonuria (DSAKU) e.V) ; Lauridsen, Anne-Grethe (Gaucher Association Denmark) ; Sestini, Sylvia (Italian Association of Patients With Alkaptonuria (aimAKU)) ; Weinhold, Nathalie (Metabolic Unit, Interdisciplinary Centre for Metabolism: Endocrinology, Diabetes and Metabolism (UP) and Children's Hospital, Charité University Hospital Berlin) ; Hahn, Andreas (Department of Child Neurology, Justus-Liebig University) ; Montanari, Chiara (Department of Maternal and Child Health, San Paolo Hospital, University of Milan, ASST Santi Paolo e Carlo) ; Rovelli, Valentina (Department of Maternal and Child Health, San Paolo Hospital, University of Milan, ASST Santi Paolo e Carlo) ; Bellettato, Cinzia M. (MetabERN, Regional Coordinating Center for Rare Diseases, Udine University Hospital) ; Paneghetti, Laura (MetabERN, Regional Coordinating Center for Rare Diseases, Udine University Hospital) ; van Lingen, Corine (MetabERN, Regional Coordinating Center for Rare Diseases, Udine University Hospital) ; Scarpa, Maurizio (MetabERN, Regional Coordinating Center for Rare Diseases, Udine University Hospital) ; Universitat Autònoma de Barcelona