Recommendations from the European Working Group for Value Assessment and Funding Processes in Rare Diseases (ORPH-VAL)
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Annemans, Lieven (Ghent University)
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Aymé, Ségolène (ICM, Paris) ;
Le Cam, Yann (EURORDIS-Rare Diseases Europe, Paris) ;
Facey, Karen (University of Edinburgh) ;
Gunther, Penilla (Swedish Parliament, Stockholm) ;
Nicod, Elena (Bocconi University, Milan) ;
Reni, Michele (IRCCS Ospedale San Raffaele Scientific Institute, Milan) ;
Roux, Jean-Louis (EURORDIS-Rare Diseases Europe, Paris) ;
Schlander, Michael (Institute for Innovation & Valuation in Health Care, Wiesbaden, Germany) ;
Taylor, David (University College London (UCL)) ;
Tomino, Carlo (Clinical Research at IRCSS San Raffaele, Rome) ;
Torrent-Farnell, Josep (Universitat Autònoma de Barcelona. Departament de Farmacologia, de Terapèutica i de Toxicologia) ;
Upadhyaya, Sheela (NICE, Manchester) ;
Hutchings, Adam (Dolon Ltd, London) ;
Le Dez, Lugdivine (European government relations and public policy at Celgene, Brussels)
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