Assessing the outcomes and experiences of care from the perspective of people living with chronic conditions, to support countries in developing people-centred policies and practices : study protocol of the International Survey of People Living with Chronic Conditions (PaRIS survey)
de Boer, Dolf (Netherlands Institute for Health Services Research (NIVEL))
van den Berg, Michael (Organisation for Economic Co-operation and Development (França))
Ballester, Marta (Universitat Autònoma de Barcelona. Institut Universitari Avedis Donabedian)
Bloemeke, Janika (Optimedis)
Boerma, Wienke (Netherlands Institute for Health Services Research (NIVEL))
de Bienassis, Katherine (Organisation for Economic Co-operation and Development)
Groenewegen, Peter (Utrecht University)
Groene, Oliver (Optimedis)
Kendir, Candan (Organisation for Economic Co-operation and Development)
Klazinga, Niek (Organisation for Economic Co-operation and Development)
Porter, Ian (University of Exeter Medical School)
Suñol Sala, Rosa (Universitat Autònoma de Barcelona. Institut Universitari Avedis Donabedian)
Thomas, Laura (Ipsos MORI (Regne Unit))
Valderas, Jose Maria (National University Health System)
Williams, Rachel (Ipsos MORI UK Ltd)
Rijken, Mieke (University of Eastern Finland)

Data:	2022
Resum:	In view of growing populations with chronic conditions, many countries are redesigning their health systems. However, little information is available about how health systems perform from the perspective of people living with chronic conditions. The Organisation for Economic Co-operation and Development (OECD) Member States therefore mandated the OECD to initiate the International Survey of People Living with Chronic Conditions (PaRIS survey), which aims to provide insight in outcomes and experiences of care as reported by people living with chronic conditions. The PaRIS-SUR consortium has been tasked by the OECD to support the development and implementation of the survey. As primary care services play a pivotal role in the management of chronic conditions, the PaRIS survey will be implemented in the primary care setting. Data will be collected with a survey among users of primary care services aged 45 years or older, of whom many have chronic conditions. An additional survey is conducted among their primary care providers. The nested study design will allow analysis of the patient-reported data in relation to characteristics of and care provided by primary care providers within and across countries. In 2022, the survey will be tested in a Field Trial in participating countries. Data for cross-country comparison will be collected by the Main Survey in 2023. Informed consent will be obtained from primary care providers and service users. National Project Managers search ethical approval of the survey in their country, if required. Reporting by the OECD will focus on questions for international comparison. A secured information technology platform will be developed for participants and stakeholders in countries to receive feedback and answer their own questions. Findings will also be disseminated through an international OECD flagship report, conferences, scientific papers and policy briefs, to inform strategies to improve care for people living with chronic conditions throughout the wortld.
Nota:	Altres ajuts: Organisation de Coopération et de Développement Économiques Contract 300003437
Drets:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, sempre que no sigui amb finalitats comercials, i sempre que es reconegui l'autoria de l'obra original.
Llengua:	Anglès
Document:	Article ; recerca ; Versió publicada
Matèria:	Health policy ; International health services ; Quality in health care ; Organisation of health services
Publicat a:	BMJ open, Vol. 12 (september 2022) , ISSN 2044-6055

DOI: 10.1136/bmjopen-2022-061424
PMID: 36123114

10 p, 444.6 KB

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