Fraternidad política y enfermedades raras
Puyol González, Àngel 1968- (Universitat Autònoma de Barcelona)

Additional title:	Political fraternity and rare diseases
Date:	2021
Description:	18 pàg.
Abstract:	Rare diseases generally receive less funding for their medical research and treatments than other diseases. Apart from well-known scientific and economic explanations, there are two major ethical positions regarding this fact, the one that approves it for reasons of utilitarian ethics, and the one that condemns it by insisting on egalitarian and individual rights reasons. In this article, I analyse the problems of both types of moral justification, and propose an ethical alternative based on the idea of political fraternity that, applied to rare diseases, avoids the worst consequences of both utilitarianism and the language of individual rights to health and mere egalitarianism.
Grants:	Ministerio de Ciencia e Innovación PID2019-105422GB-100
Rights:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, i la comunicació pública de l'obra, sempre que no sigui amb finalitats comercials, i sempre que es reconegui l'autoria de l'obra original. No es permet la creació d'obres derivades.
Language:	Castellà
Document:	Article ; recerca ; Versió publicada
Subject:	Bioethics ; Fraternity ; Rare diseases ; Orphan Drugs ; Public health ethics ; Solidarity
Published in:	Araucaria: revista Iberoamericana de filosofía, política, humanidades y relaciones internacionales, Núm. 46 (2021) , p. 351-368, ISSN 1575-6823

DOI: 10.12795/ARAUCARIA.2021.I46.17

18 p, 347.3 KB

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