Using patient values and preferences to inform the importance of health outcomes in practice guideline development following the GRADE approach
Zhang, Yuan (McMaster University (Canadà))
Alonso-Coello, Pablo (Institut d'Investigació Biomèdica Sant Pau)
Brozek, Jan (McMaster University (Canadà))
Wiercioch, Wojtek (McMaster University (Canadà))
Etxeandia-Ikobaltzeta, Itziar (McMaster University (Canadà))
Akl, Elie A. (American University of Beirut)
Meerpohl, Joerg J. (Université Paris Descartes)
Alhazzani, Waleed (McMaster University (Canadà))
Carrasco-Labra, Alonso (Universidad de Chile)
Morgan, Rebecca L. (McMaster University (Canadà))
Mustafa, Reem A. (University of Missouri-Kansas City)
Riva, John J. (McMaster University (Canadà))
Moore, Ainsley (McMaster University (Canadà))
Yepes-Nuñez, Juan José (University of Antioquia)
Cuello-Garcia, Carlos (Tecnologico de Monterrey School of Medicine)
AlRayees, Zulfa (Ministry of Health)
Manja, Veena (University at Buffalo)
Falavigna, Maicon (Federal University of Rio Grande do Sul)
Neumann, Ignacio (Pontificia Universidad Católica de Chile)
Brignardello-Petersen, Romina (Universidad de Chile)
Santesso, Nancy (McMaster University (Canadà))
Rochwerg, Bram (McMaster University (Canadà))
Darzi, Andrea (American University of Beirut)
Rojas, Maria Ximena (Pontificia Universidad Javeriana)
Adi, Yaser (King Faisal Specialist Hospital and Research Centre)
Bollig, Claudia (University of Freiburg)
Waziry, Reem (University of New South Wales)
Schünemann, Holger J. (McMaster University (Canadà))
Universitat Autònoma de Barcelona

Fecha:	2017
Resumen:	There are diverse opinions and confusion about defining and including patient values and preferences (i. e. the importance people place on the health outcomes) in the guideline development processes. This article aims to provide an overview of a process for systematically incorporating values and preferences in guideline development. In 2013 and 2014, we followed the Grading of Recommendations Assessment, Development and Evaluation (GRADE) approach to adopt, adapt and develop 226 recommendations in 22 guidelines for the Ministry of Health of the Kingdom of Saudi Arabia. To collect context-specific values and preferences for each recommendation, we performed systematic reviews, asked clinical experts to provide feedback according to their clinical experience, and consulted patient representatives. We found several types of studies addressing the importance of outcomes, including those reporting utilities, non-utility measures of health states based on structured questionnaires or scales, and qualitative studies. Guideline panels used the relative importance of outcomes based on values and preferences to weigh the balance of desirable and undesirable consequences of alternative intervention options. However, we found few studies addressing local values and preferences. Currently there are different but no firmly established processes for integrating patient values and preferences in healthcare decision-making of practice guideline development. With GRADE Evidence-to-Decision (EtD) frameworks, we provide an empirical strategy to find and incorporate values and preferences in guidelines by performing systematic reviews and eliciting information from guideline panel members and patient representatives. However, more research and practical guidance are needed on how to search for relevant studies and grey literature, assess the certainty of this evidence, and best summarize and present the findings.
Derechos:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, fins i tot amb finalitats comercials, sempre i quan es reconegui l'autoria de l'obra original.
Lengua:	Anglès
Documento:	Article ; recerca ; Versió publicada
Materia:	Evidence to decision ; Guideline development ; Outcome importance ; Patient preferences ; Patient values ; Systematic review
Publicado en:	Health and quality of life outcomes, Vol. 15 Núm. 1 (february 2017) , p. 52, ISSN 1477-7525

DOI: 10.1186/s12955-017-0621-0
PMID: 28460638

10 p, 667.8 KB

El registro aparece en las colecciones:
Documentos de investigación > Documentos de los grupos de investigación de la UAB > Centros y grupos de investigación (producción científica) > Ciencias de la salud y biociencias > Institut de Recerca Sant Pau
Artículos > Artículos de investigación
Artículos > Artículos publicados