The impact of gout as described by patients, using the lens of The International Classification of Functioning, Disability and Health (ICF) : a qualitative study
Cairns, Isobel (University of Otago. Rehabilitation Teaching and Research Unit, Department of Medicine)
Lindsay, Karen (Auckland City Hospital)
Dalbeth, Nicola (University of Auckland. Department of Medicine)
Díaz Torne, César (Institut d'Investigació Biomèdica Sant Pau)
Antònia Pou, Maria (Institut Català de la Salut)
Rodríguez Diez, Basilio (Hospital Universitari Vall d'Hebron)
Pujol Ribera, Enriqueta (Institut Universitari d'Investigació en Atenció Primària Jordi Gol)
Panter, Charlotte (Adelphi Values, Adelphi Mill, Bollington, Cheshire, SK10 5JB UK)
Arbuckle, Rob (Adelphi Values, Adelphi Mill, Bollington, Cheshire, SK10 5JB UK)
Tatlock, Sophi (Adelphi Values, Adelphi Mill, Bollington, Cheshire, SK10 5JB UK)
Taylor, William J. (University of Otago. Rehabilitation Teaching and Research Unit, Department of Medicine)
Universitat Autònoma de Barcelona

Date:	2020
Abstract:	The International Classification of Functioning, Disability and Health (ICF) aims to comprehensively describe the ways in which a person's health condition affects their life. This study aimed to contribute to the development of an ICF core set for gout through patient opinion derived from focus groups and interviews. We conducted a secondary qualitative analysis of data from three studies investigating the patient experience of gout. In total there were 30 individual interviews and 2 focus groups (N = 17) comprising 47 participants. We conducted thematic analysis of the textual data to extract meaning units, which were then linked to the ICF. A large number of ICF categories were relevant to patients with gout. Participants mentioned 93 third level categories, 17 of which were mentioned by more than 50% of patients. The most references for a single category was for b280, Sensation of pain, followed by personal factors (not yet categorised by the ICF). The most participants mentioned the environmental factor e355, Health professional support, followed by b280, Sensation of pain. The categories identified in this study as relevant to patients with gout highlight the severe pain associated with this disease, the impact on mobility and corresponding life areas. The roles of health professional support, medication, and personal attitudes to disease management are also reflected in the data. These results will contribute to the development of the ICF core set for gout.
Note:	This project was supported by Arthritis New Zealand (grant reference R259 to WJT). The US data collection was funded by Pfizer (undertaken commercially by Adelphi Values). The NZ data collection was supported by the Maaori Gout Action Group of Counties Manukau District Health Board and the Auckland Rheumatology Fund (to KL). The Spanish data were collected with the direct support of the authors. The funders had no direct role in the conduct of the reported study, analysis of the data or writing of the manuscript.
Rights:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, fins i tot amb finalitats comercials, sempre i quan es reconegui l'autoria de l'obra original.
Language:	Anglès
Document:	Article ; recerca ; Versió publicada
Subject:	Gout ; International classification of functioning ; Disability and health ; World Health Organisation ; Patient outcome assessment ; Qualitative research
Published in:	BMC Rheumatology, Vol. 4 (august 2020) , ISSN 2520-1026

DOI: 10.1186/s41927-020-00147-2
PMID: 32832854

9 p, 563.7 KB

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