How are patients with chronic urticaria interested in using information and communication technologies to guide their healthcare? A UCARE study
Cherrez-Ojeda, Ivan (Respiralab, Respiralab Research Group, Guayaquil, Ecuador)
Vanegas, Emanuel (Respiralab, Respiralab Research Group, Guayaquil, Ecuador)
Cherrez, Annia (Clinic and Policlinic for Dermatology and Venereology, University Medical Center Rostock, Rostock, Germany)
Felix, Miguel (Respiralab, Respiralab Research Group, Guayaquil, Ecuador)
Weller, Karsten (Dermatological Allergology, Allergie-Centrum-Charité, Department of Dermatology and Allergy, Charité - Universitätsmedizin Berlin, Germany)
Magerl, Markus (Dermatological Allergology, Allergie-Centrum-Charité, Department of Dermatology and Allergy, Charité - Universitätsmedizin Berlin, Germany)
Maurer, Rasmus Robin (Dermatological Allergology, Allergie-Centrum-Charité, Department of Dermatology and Allergy, Charité - Universitätsmedizin Berlin, Germany)
Mata, Valeria L. (Respiralab, Respiralab Research Group, Guayaquil, Ecuador)
Kasperska-Zajac, Alicja (European Center for Diagnosis and Treatment of Urticaria, Medical University of Silesia, Katowice, Poland)
Sikora, Agnieszka (European Center for Diagnosis and Treatment of Urticaria, Medical University of Silesia, Katowice, Poland)
Fomina, Daria (I.M. Sechenov First Moscow State Medical University. Department of Allergology and Clinical Immunology)
Kovalkova, Elena (City Center of Allergy and Immunology, Clinical City Hospital #52, Moscow, Russia)
Godse, Kiran (Department of Dermatology, D Y, Patil University School of Medicine and Hospital, Mumbai, India)
Rao, Nimmagadda Dheeraj (Department of Dermatology, D Y, Patil University School of Medicine and Hospital, Mumbai, India)
Khoshkhui, Maryam (Department of Allergy and Immunology, Mashhad University of Medical Sciences, Mashhad, Iran)
Rastgoo, Sahar (Department of Allergy and Immunology, Mashhad University of Medical Sciences, Mashhad, Iran)
Criado, Roberta Fachini Jardim (Faculdade de Medicina do ABC)
Abuzakouk, Mohamed (Allergy and Immunology Department, Cleveland Clinic Abu Dhabi, United Arab Emirates)
Grandon, Deepa (Allergy and Immunology Department, Cleveland Clinic Abu Dhabi, United Arab Emirates)
Van Doorn, Martijn B. A. (Department of Dermatology, Erasmus MC, Rotterdam, the Netherlands)
Oliveira Rodrigues Valle, Solange (Hospital Universitário Clementino Fraga Filho (Brasil))
De Souza Lima, Eduardo Magalhães (Faculty of Science and Health of Juiz de Fora - SUPREMA, Minas Gerais, Brazil)
Thomsen, Simon Francis (Department of Dermatology, Bispebjerg Hospital, University of Copenhagen, Biomedical Sciences, Copenhagen, Denmark)
Ramón, German D. (Instituto de Alergia e Inmunología del Sur, Bahía Blanca, Prov. De Buenos Aires, Argentina)
Matos Benavides, Edgar E. (Centro de Referencia de Alergia, Asma e Inmunología - Instituto Nacional del Niño, Lima, Perú)
Bauer, Andrea (Department of Dermatology, University Allergy Center, University Hospital Carl Gustav Carus, Technical University, Dresden, Germany)
Giménez-Arnau, Ana M 1961- (Universitat Autònoma de Barcelona. Departament de Medicina)
Kocatürk, Emek (Department of Dermatology, Koç University School of Medicine, Istanbul, Turkey)
Guillet, Carole (University Hospital Zurich (Suïssa))
Larco, Jose Ignacio (Allergy Department, Clinica San Felipe, Lima, Peru)
Zhao, Zuo-Tao (Department of Dermatology and Venereology, Peking University First Hospital, Beijing, China)
Makris, Michael (University General Hospital Attikon (Haidari, Grècia))
Ritchie, Carla (Hospital Italiano de Buenos Aires (Argentina))
Xepapadaki, Paraskevi (National and Kapodistrian University of Athens)
Ensina, Luis Felipe (Federal University of São Paulo. São Paulo, Brazil)
Cherrez, Sofia (Department of Dermatology, SRH Zentralklinikum Suhl, Germany)
Maurer, Marcus (Dermatological Allergology, Allergie-Centrum-Charité, Department of Dermatology and Allergy, Charité - Universitätsmedizin Berlin, Germany)

Data:	2021
Resum:	Patients with chronic urticaria (CU) are increasingly using information and communication technologies (ICTs) to manage their health. What CU patients expect from ICTs and which ICTs they prefer remains unknown. We assessed why CU patients use ICTs, which ones they prefer, and what drives their expectations and choices. In this cross-sectional study, 1841 patients across 17 countries were recruited at UCAREs (Urticaria Centers of Reference and Excellence). Patients with CU who were >12 years old completed a 23-item questionnaire. Most patients were interested in receiving disease information (87. 3%), asking physicians about CU (84. 1%), and communicating with other patients through ICTs (65. 6%). For receiving disease information, patients preferred one-to-one and one-to-many ICTs, especially web browsers. One-to-one ICTs were also the ICTs of choice for asking physicians about urticaria and for communicating with other patients, and e-mail and WhatsApp were the preferred ICTs, respectively. Many-to-many ICTs such as Facebook, Instagram, LinkedIn, and Twitter were least preferred for all 3 purposes. Living in rural areas and higher education were linked to higher odds of being interested in receiving disease information, asking physicians, and communicating with patients through ICTs. Most patients and especially patients with higher education who live in rural areas are interested in using ICTs for their healthcare, but prefer different ICTs for different purposes, ie, web browsers for obtaining information, e-mail for asking physicians, and WhatsApp for communicating with other patients. Our findings may help to improve ICTs for CU.
Drets:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, i la comunicació pública de l'obra, sempre que no sigui amb finalitats comercials, i sempre que es reconegui l'autoria de l'obra original. No es permet la creació d'obres derivades.
Llengua:	Anglès
Document:	Article ; recerca ; Versió publicada
Matèria:	Chronic urticaria ; Information and communication technologies ; Internet ; E-mail ; WhatsApp
Publicat a:	The World Allergy Organization Journal, Vol. 14 (june 2021) , ISSN 1939-4551

DOI: 10.1016/j.waojou.2021.100542
PMID: 34141048

12 p, 446.0 KB

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