Patient journey experiences may contribute to improve healthcare for patients with rare endocrine diseases - Webb, S. M 1952- (Institut d'Investigació Biomèdica Sant Pau) ; Kristensen, Jette (ePAG & Chair of Danish Addison Patient Association) ; Nordenström, Anna (Pediatric Endocrinology) ; Vitali, Diana (ePAG & Chair SOD ITALIA - Italian Patients Organization for Septo Optic Dysplasia and other Neuroendocrine Conditions) ; Amodru, Vincent (Aix-Marseille Université) ; Wiehe, Lenja Katharina (EURORDIS - Rare Diseases Europe) ; Bolz-Johnson, Matt (EURORDIS - Rare Diseases Europe) ; Universitat Autònoma de Barcelona