Spanish survey on follow-up programmes for children born very preterm
Pallás-Alonso, Carmen (División de Neonatología. Instituto de Investigación Sanitaria i+12. Hospital Universitario 12 de Octubre. Universidad Complutense de Madrid)
Loureiro, Begoña (Hospital Universitario de Cruces (Barakaldo, País Basc))
De la Cruz Bértolo, Javier (Instituto de Investigación Sanitaria Hospital 12 de Octubre. Hospital Universitario 12 de Octubre. Universidad Complutense de Madrid. Servicio de Neonatología)
García, Pilar (Hospital Clínico Universitario (Salamanca))
Ginovart, Gemma (Institut d'Investigació Biomèdica Sant Pau)
Jiménez, Ana (Hospital de Algeciras. Servicio de Neonatología)
Martín, Yolanda (Centro de Salud Goya. Pediatría)
Soriano, Javier (Centro de Salud Fuensanta. Pediatría)
Torres, María José (Hospital Universitario 12 de Octubre (Madrid))
Vento Torres, Máximo (Hospital Universitari i Politècnic La Fe (València))

Date:	2019
Abstract:	Aim: To describe variations in practice between follow-up programmes for very preterm children born at less than 32 weeks' gestation or with very low birth weight of less than 1,500 g. Methods: A survey on follow-up practices was electronically distributed to level II and III units among hospitals of the Spanish National Health Service in 2016. The survey included 70 questions covering issues such as follow-up organisation and resources, routine assessments, relationships with other services and families, information management and training. Results: The response rate was 91. 5% (141/154). Among respondents, 70. 9% (100/141) reported that they do provide follow-up and 42% do so up to six years of age. Routine neurological and ophthalmological follow-up is not performed in 60% and 37% of hospitals, respectively, and a second hearing assessment is not given in 62%. Just 38% of units have psychologist. In 41% of hospitals, training in follow-up skills is not included in Paediatric Residency training programme. Conclusion: Although Spain has a nationwide health system that provides universal health coverage, we found that follow-up care for children born very preterm/very low birth weight is not equitable. Nearly half of paediatric residents receive no training in follow-up for this high-risk population.
Grants:	Instituto de Salud Carlos III RD16/0022
Note:	Altres ajuts: Sociedad Española de Neonatología; RETICS (Cooperative Thematic Research Networks) PN R+D+I 2018-2021 (Spain); the European Development Fund Regional (ERDF).
Rights:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, i la comunicació pública de l'obra, sempre que no sigui amb finalitats comercials, i sempre que es reconegui l'autoria de l'obra original. No es permet la creació d'obres derivades.
Language:	Anglès
Document:	Article ; recerca ; Versió publicada
Subject:	Follow-up ; High-risk children ; Quality of care ; Very low birth weight ; Very preterm
Published in:	Acta Paediatrica, International Journal of Paediatrics, Vol. 108 Núm. 6 (june 2019) , p. 1042-1048, ISSN 1651-2227

DOI: 10.1111/apa.14647
PMID: 30447072

7 p, 263.4 KB

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Research literature > UAB research groups literature > Research Centres and Groups (research output) > Health sciences and biosciences > Institut de Recerca Sant Pau
Articles > Research articles
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