Patients' Lived Experience in a Multicomponent Intervention for Fibromyalgia Syndrome in Primary Care : A Qualitative Interview Study
Arfuch, Victoria Mailen 
(Universitat Autònoma de Barcelona. Departament de Pediatria, Obstetrícia i Ginecologia i de Medicina Preventiva i Salut Pública)
Caballol Angelats, Rosa 
(Institut Català de la Salut)
Aguilar Martín, Carina 
(Institut Català de la Salut)
Gonçalves, A. Q 
(Institut Català de la Salut)
Carrasco Querol, Noèlia 
(Institut Universitari d'Investigació en Atenció Primària Jordi Gol)
González Serra, Gemma (Institut Català de la Salut)
Sancho Sol, Maria Cinta (Institut Català de la Salut)
Fusté Anguera, Immaculada
(Institut Català de la Salut)
Friberg, Emilie (Karolinska Institutet (Estocolm, Suècia))
Berenguera, Anna
(Universitat Autònoma de Barcelona. Departament de Pediatria, Obstetrícia i Ginecologia i de Medicina Preventiva i Salut Pública)
| Data: |
2022 |
| Resum: |
Fibromyalgia syndrome (FMS) disrupts patients' biopsychosocial spheres. A multicomponent intervention (MCI) program, which combined health education, cognitive behavioral therapy, and physical activity, was conducted in South Catalonia's primary care centers with the aim of improving symptom self-management and quality of life. A qualitative interview study was carried out to understand patients' lived experiences during the intervention program. Sampled purposively, 10 patients were interviewed via phone calls and face-to-face. The encounters were audio-recorded, verbatim transcribed, and analyzed through thematic analysis. As a result, four themes emerged: legitimizing fibromyalgia through the MCI, the MCI as a socializing experience, learning how to live with FMS through the MCI, and room for improving the MCI. Participants agreed on the program being an insightful experience that promoted illness knowledge and acceptance and that improved their coping skills and symptom self-management. The inclusion of additional psychological guidance, expressive psychological group therapy, and providing relatives with information were proposed for enhancing the program. Our findings have contributed to gaining insight into the subjective impact of the MCI and identifying new therapeutic targets to tailor the program to patients' needs, which will hopefully increase its effectiveness and improve their quality of life. |
| Ajuts: |
Instituto de Salud Carlos III PI1800943
|
| Drets: |
Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, fins i tot amb finalitats comercials, sempre i quan es reconegui l'autoria de l'obra original.  |
| Llengua: |
Anglès |
| Document: |
Article ; recerca ; Versió publicada |
| Matèria: |
Fibromyalgia syndrome ;
Primary care ;
Multicomponent intervention ;
Qualitative research ;
Interview study ;
Thematic analysis |
| Publicat a: |
International journal of environmental research and public health, Vol. 19 Núm. 20 (october 2022) , p. 13322, ISSN 1660-4601 |
DOI: 10.3390/ijerph192013322
PMID: 36293900
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