Evaluating the implementation of PROMs and PREMs in routine clinical care : co-design of tools from the perspective of patients and healthcare professionals
Amat-Fernandez, Clara (Institut Hospital del Mar d'Investigacions Mèdiques)
Pardo Cladellas, Yolanda (Universitat Autònoma de Barcelona. Departament de Psiquiatria i de Medicina Legal)
Ferrer Forés, Maria Montserrat (Institut Hospital del Mar d'Investigacions Mèdiques)
Bosch, Guillermo (Hospital del Mar (Barcelona, Catalunya))
Lizano-Barrantes, Catalina (Institut Hospital del Mar d'Investigacions Mèdiques)
Briseño Diaz, Renata (Institut Hospital del Mar d'Investigacions Mèdiques)
Vernet-Tomas, Maria (Hospital del Mar (Barcelona, Catalunya))
Fumadó, Lluís (Hospital del Mar (Barcelona, Catalunya))
Beisani, Marc (Hospital del Mar (Barcelona, Catalunya))
Redondo-Pachón, Dolores (Hospital del Mar (Barcelona, Catalunya))
Bach Pascual, Anna (Hospital del Mar (Barcelona, Catalunya))
Garin, Olatz (Institut Hospital del Mar d'Investigacions Mèdiques)

Data:	2025
Resum:	Implementation of patient-reported measures (PRMs) is an integral element for patient-centered models; however, there is still hardly any quantitative evidence regarding its impact in routine care settings. The objective of this study was to codesign two concise tools that allow for a standardized and longitudinal assessment of the implementation of PRMs in routine care in terms of acceptability and perceived value from the perspective of both patients and healthcare professionals. A list of constructs and items to be presented, separately, to patients and healthcare professionals was created from evidence gathered through a narrative literature review. Focus groups, composed of either patients or healthcare professionals from different chronic conditions, were conducted for the co-design of independent assessments. Once agreement was reached, the content validity was examined in separate consensus meetings. A total of 10 patients and 10 healthcare professionals participated in the focus groups. After 7 focus groups, the PRMs Implementation Assessment Tool for patients (PRMIAT-P) was developed with 33 items in 9 constructs, and the tool for healthcare professionals (PRMIAT-HP) had 33 items in 16 constructs. Content validity was confirmed for both tools. The perspective of patients and healthcare professionals regarding the implementation of PRMs in routine care can be evaluated quantitively with the PRMIAT tools. These tools are understandable, concise and comprehensive, and can be used in multiple settings and for different chronic conditions. They have been codesigned as a standard set to facilitate both longitudinal assessments and performing benchmarking among different initiatives.
Ajuts:	Instituto de Salud Carlos III PI21/00026 Agència de Gestió d'Ajuts Universitaris i de Recerca 2021/SGR-00624
Drets:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, fins i tot amb finalitats comercials, sempre i quan es reconegui l'autoria de l'obra original.
Llengua:	Anglès
Document:	Article ; recerca ; Versió publicada
Matèria:	Implementation science ; Health services research ; Patient-reported outcome measures ; Patient-reported experience measures ; Patient centered care ; Health care evaluation mechanisms ; Healthcare quality assessment ; Co-design ; Routine clinical care
Publicat a:	Health and quality of life outcomes, Vol. 23 Num. 1 (February 2025) , ISSN 1477-7525

DOI: 10.1186/s12955-025-02333-7
PMID: 39962425

12 p, 2.0 MB

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