Talking the same language on patient empowerment : Development and content validation of a taxonomy of self-management interventions for chronic conditions
Orrego, Carola (Universitat Autònoma de Barcelona. Institut Universitari Avedis Donabedian)
Ballester, Marta (Universitat Autònoma de Barcelona. Institut Universitari Avedis Donabedian)
Heymans, Monique (Netherlands Institute for Health Services Research (NIVEL))
Camus, Estela (Universitat Autònoma de Barcelona. Institut Universitari Avedis Donabedian)
Groene, Oliver (London School of Hygiene and Tropical Medicine)
Niño de Guzmán, Ena Pery (Institut d'Investigació Biomèdica Sant Pau)
Pardo-Hernandez, Hector (Centro de Investigación Biomédica en Red de Epidemiología y Salud Pública)
Suñol Sala, Rosa (Universitat Autònoma de Barcelona. Institut Universitari Avedis Donabedian)

Date:	2021
Abstract:	The literature on self-management interventions (SMIs) is growing exponentially, but it is characterized by heterogeneous reporting that limits comparability across studies and interventions. Building an SMI taxonomy is the first step towards creating a common language for stakeholders to drive research in this area and promote patient self-management and empowerment. To develop and validate the content of a comprehensive taxonomy of SMIs for long-term conditions that will help identify key characteristics and facilitate design, reporting and comparisons of SMIs. We employed a mixed-methods approach incorporating a literature review, an iterative consultation process and mapping of key domains, concepts and elements to develop an initial SMI taxonomy that was subsequently reviewed in a two-round online Delphi survey with a purposive sample of international experts. The final SMI taxonomy has 132 components classified into four domains: intervention characteristics, expected patient/caregiver self-management behaviours, outcomes for measuring SMIs and target population characteristics. The two-round Delphi exercise involving 27 international experts demonstrated overall high agreement with the proposed items, with a mean score (on a scale of 1-9) per component of 8. 0 (range 6. 1-8. 8) in round 1 and 8. 1 (range 7. 0-8. 9) in round 2. The SMI taxonomy contributes to building a common framework for the patient self-management field and can help implement and improve patient empowerment and facilitate comparative effectiveness research of SMIs. Patient or public contribution. Patients' representatives contributed as experts in the Delphi process and as partners of the consortium.
Grants:	European Commission 754936
Rights:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, fins i tot amb finalitats comercials, sempre i quan es reconegui l'autoria de l'obra original.
Language:	Anglès
Document:	Article ; recerca ; Versió publicada
Subject:	Chronic diseases ; Comparative effectiveness ; Intervention reporting ; Patient empowerment ; Patient-centred care ; Self-management
Published in:	Health Expectations, Vol. 24 (july 2021) , p. 1626-1638, ISSN 1369-7625

DOI: 10.1111/hex.13303
PMID: 34252259

13 p, 368.7 KB

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Research literature > UAB research groups literature > Research Centres and Groups (research output) > Health sciences and biosciences > Avedis Donabedian Research Institute-UAB
Research literature > UAB research groups literature > Research Centres and Groups (research output) > Health sciences and biosciences > Institut de Recerca Sant Pau
Articles > Research articles
Articles > Published articles