Development and Preliminary Validation of the HSQoL-24 Tool to Assess Quality of Life in Patients With Hidradenitis Suppurativa Desarrollo y validación preliminar del instrumento HSQoL-24 para evaluar calidad de vida en pacientes con hidradenitis supurativa
Marrón, Servando E. (Grupo Español de Investigación en Dermatología y Psiquiatría (GEDEPSI) de la Academia Española de Dermatología y Venereología (AEDV))
Gómez-Barrera, Manuel (Universidad San Jorge (Saragossa))
Tomás-Aragonés, Lucía (Grupo Español de Investigación en Dermatología y Psiquiatría (GEDEPSI) de la Academia Española de Dermatología y Venereología (AEDV))
Díaz Díaz, Rosa María (Grupo Español de Investigación en Dermatología y Psiquiatría (GEDEPSI) de la Academia Española de Dermatología y Venereología (AEDV))
Vilarrasa-Rull, Eva (Institut d'Investigació Biomèdica Sant Pau)
Madrid Álvarez, María Blanca (Grupo Español de Investigación en Dermatología y Psiquiatría (GEDEPSI) de la Academia Española de Dermatología y Venereología (AEDV))
Puig Sanz, Lluís (Institut d'Investigació Biomèdica Sant Pau)
Universitat Autònoma de Barcelona

Date:	2019
Abstract:	Hidradenitis suppurativa (HS) is a chronic inflammatory disease of the skin with a negative impact on quality of life. Up to now, there are no disease specific instruments in Spanish to assess quality of life in HS. The objective of this study was to develop and validate a questionnaire to evaluate the quality of life in patients with HS. A multicentre study was carried out in Spain between 2016 and 2017 to develop the questionnaire. Both the conceptual framework and understanding of the patient's situation were considered through a review of the literature, consensus of professionals from different related health areas, and in-depth interviews with patients. The resulting questionnaire was passed to a group of 30 patients with 30±10 days of interval between both assessments. The reliability analysis shows a good internal consistency and reproducibility with Cronbach's alpha score of 0. 920 (test) and 0. 917 (retest) and intraclass correlation coefficient with DLQI and Skindex-29 of 0. 698 IC 95% (0. 456-0. 844) and 0. 900 IC 95% (0. 801-0. 951) respectively. Cut-off points were established for its use and the instrument was found to be sensitive to change. The HSQoL-24 is the first disease-specific self-administered instrument to assess quality of life in patients with HS in Spanish. It is user friendly, and easy to score. This study shows that the instrument is reliable, valid and sensitive to change, pending confirmatory study with a larger sample of 100 patients with HS.
Rights:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, i la comunicació pública de l'obra, sempre que no sigui amb finalitats comercials, i sempre que es reconegui l'autoria de l'obra original. No es permet la creació d'obres derivades.
Language:	Castellà
Document:	Article ; recerca ; Versió publicada
Subject:	Hidradenitis suppurativa ; Patient-informed results ; Psychometric validation ; Quality of life ; Questionnaire design
Published in:	Actas dermo-sifiliográficas, Vol. 110 Núm. 7 (septiembre 2019) , p. 554-560, ISSN 1578-2190

DOI: 10.1016/j.ad.2019.02.002
PMID: 31023484

7 p, 914.8 KB

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Research literature > UAB research groups literature > Research Centres and Groups (research output) > Health sciences and biosciences > Institut de Recerca Sant Pau
Articles > Research articles
Articles > Published articles