The impact of improving haemophilia A management within the Spanish National Healthcare System : a social return on investment analysis
Soto, Inmaculada (Hospital Universitario Central de Asturias)
Mateo, José (Institut d'Investigació Biomèdica Sant Pau)
García-Diego, Daniel Aníbal (Federación Española de Hemofilia - FEDHEMO)
Gil, Beatriz (Roche Farma España)
Ruiz-Beato, Elena (Roche Farma España)
Ivanova, Yoana (Weber)
Martín Lorenzo, Teresa (Weber)
Maravilla-Herrera, Paulina (Weber)
Hidalgo-Vega, Álvaro (Universidad de Castilla-La Mancha)
Merino, María (Weber)
Universitat Autònoma de Barcelona

Data:	2022
Resum:	Haemophilia A (HA) has been associated with poor health-related quality of life and a large economic burden, accentuated by severity, arthropathy, and inhibitors. To meet global standards of care, the management of HA should align with the principles of care outlined by the World Federation of Haemophilia. The aims of the present study were to establish a set of proposals to improve HA management within the Spanish National Health System (SNHS) and to estimate the impact its hypothetical implementation would generate from a clinical, healthcare, economic, and social perspective. A multidisciplinary group of experts agreed on a set of 15 proposals to improve HA management within the SNHS. Thereafter, a forecast-type Social Return on Investment analysis was carried out to estimate the impact of implementing this set of proposals within the SNHS over a one-year timeframe, in relation to the required investment. This study estimated that the implementation of the complete set of 15 proposals would require a total investment of 2. 34 M€ and have a total impact of 14. 60 M€. Accordingly, every euro invested in the complete set of 15 proposals would yield a social return of €6. 23 (€3. 37 in the worst-case scenario and €9. 69 in the best-case scenario) of both tangible and intangible nature in similar proportions (45. 71 and 54. 29%, respectively). These results can be used to inform policy and practice such that interventions that may potentially improve current public health challenges associated with the management of HA may be implemented.
Drets:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, fins i tot amb finalitats comercials, sempre i quan es reconegui l'autoria de l'obra original.
Llengua:	Anglès
Document:	Article ; recerca ; Versió publicada
Matèria:	Disease management ; Economic evaluation ; Public health ; Rare disease ; Social impact ; Spain
Publicat a:	BMC health services research, Vol. 22 Núm. 1 (december 2022) , p. 115, ISSN 1472-6963

DOI: 10.1186/s12913-021-07447-4
PMID: 35081958

10 p, 774.9 KB

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