Care-related quality of life of informal caregivers of stroke survivors : Cross-sectional analysis of a randomized clinical trial
Villa-García, Lorena (Universitat Autònoma de Barcelona. Departament de Medicina)
Salvat-Plana, Mercè (Instituto de Salud Carlos III)
Slof, Eric John (Universitat Autònoma de Barcelona. Departament de Medicina)
Pérez de la Ossa, Natalia (Institut Germans Trias i Pujol. Hospital Universitari Germans Trias i Pujol)
Abilleira i Castells, Sònia (Instituto de Salud Carlos III)
Ribo, Marc (Hospital Universitari Vall d'Hebron)
Hidalgo-Benítez, Verónica (Hospital del Mar (Barcelona, Catalunya))
Inzitari, Marco (Universitat Oberta de Catalunya)
Ribera, A. (Vall d'Hebron Institut de Recerca (VHIR))

Data:	2024
Resum:	We aimed to describe the intensity of care and its consequences on informal caregivers of stroke survivors according to the degree of care receivers' functional dependence for activities of daily living; and to identify the factors associated with caregivers' care-related quality of life. Cross-sectional analysis of prospective data collected in a cost-utility study alongside the RACECAT trial in Catalonia (Spain). One-hundred and thirty-two care receiver-caregiver pairs were interviewed six months after stroke. Functional dependence for activities of daily living was measured with the Barthel index. We assessed caregivers care-related quality of life with the CarerQoL, which measures seven dimensions of subjective burden (CarerQoL-7D) and a happiness score (CarerQoL-VAS). We evaluated the association between characteristics of informal caregivers, characteristics of care receivers, and intensity of care, and the caregiver's care-related quality of life (subjective burden and happiness) in a hypothesized model using a structural equation model. Of the 132 caregivers, 74,2% were women with an average age of 59. 4 ± 12. 5 years. The 56. 8% of them were spouses. The care intensity ranged from a mean of 24h/week for mild to 40h/week for severe dependence. Most caregivers (76. 3%) were satisfied with their task, regardless of dependence, but showed increasing problems in caring for severely dependent persons. Being a woman (coeff. -0. 23; 95%CI: -0. 40, -0. 07), spending more time in care tasks (coeff -0. 37; -0. 53, -0. 21) and care receiver need of constant supervision (coeff 0. 31; -0. 47, -0. 14) were associated with higher burden of care, irrespective of the degree of dependence. Caregiver burden (coeff 0. 46; 0. 30-0. 61) and care receiver anxiety or depression (coeff -0. 19; -0. 34, -0. 03) were associated with lower caregiver happiness. The findings suggest the importance of developing mainly two types of support interventions for caregivers: respite and psychosocial support. Especially for women with high caring burden and/or caring for persons with high levels of anxiety or depression.
Ajuts:	Fundació la Marató de TV3 19/U/2017
Drets:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, fins i tot amb finalitats comercials, sempre i quan es reconegui l'autoria de l'obra original.
Llengua:	Anglès
Document:	Article ; recerca ; Versió publicada
Publicat a:	PloS one, Vol. 19 (october 2024) , ISSN 1932-6203

DOI: 10.1371/journal.pone.0307930
PMID: 39365790

13 p, 1.1 MB

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Documents de recerca > Documents dels grups de recerca de la UAB > Centres i grups de recerca (producció científica) > Ciències de la salut i biociències > Institut d'Investigació en Ciencies de la Salut Germans Trias i Pujol (IGTP)
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