EAN Guideline on Palliative Care of People with Severe, Progressive Multiple Sclerosis

Google Scholar: cites

(Fondazione IRCCS Istituto Neurologico Carlo Besta (Milà, Itàlia))
Giordano, Andrea

(University of Turin)
Sastre-Garriga, Jaume

(Hospital Universitari Vall d'Hebron)
Köpke, Sascha

(University Medical Center Hamburg-Eppendorf)
Rahn, Anne Christin

(University Medical Center Hamburg-Eppendorf)
Kleiter, Ingo (Marianne-Strauß-Klinik)
Aleksovska, Katina (European Academy of Neurology (Austria))
Battaglia, Mario A. (Università degli Studi di Siena)
Bay, Jette (People with MS Advisory Committee (Dinamarca))
Copetti, Massimiliano

(Fondazione IRCCS Casa Sollievo della Sofferenza)
Drulovic, Jelena (University of Belgrade)
Kooij, Liesbeth (Nieuw Unicum, Zandvoort)
Mens, John (Nieuw Unicum)
Meza-Murillo, Edwin Roger

(Hospital Universitari Vall d'Hebron)
Milanov, Ivan (Medical University of Sofia)
Milo, Ron (Ben-Gurion University of the Negev)
Pekmezovic, Tatiana (University of Belgrade)
Vosburgh, Janine (Israel Multiple Sclerosis Society)
Silber, Eli (King's College Hospital NHS Foundation Trust)
Veronese, Simone (FARO Charitable Foundation)
Patti, Francesco

(University Hospital Policlinico Vittorio Emanuele)
Voltz, Raymond (University of Cologne)
Oliver, David J. (University of Kent, Canterbury)
Universitat Autònoma de Barcelona

Data:	2020
Resum:	Background and Purpose: Patients with severe, progressive multiple sclerosis (MS) have complex physical and psychosocial needs, typically over several years. Few treatment options are available to prevent or delay further clinical worsening in this population. The objective was to develop an evidence-based clinical practice guideline for the palliative care of patients with severe, progressive MS. Methods: This guideline was developed using the Grading of Recommendations Assessment, Development and Evaluation methodology. Formulation of the clinical questions was performed in the Patients-Intervention-Comparator-Outcome format, involving patients, carers and healthcare professionals (HPs). No uniform definition of severe MS exists: in this guideline, constant bilateral support required to walk 20 m without resting (Expanded Disability Status Scale score.
Drets:	Aquest document està subjecte a una llicència d'ús Creative Commons. Es permet la reproducció total o parcial, la distribució, la comunicació pública de l'obra i la creació d'obres derivades, sempre que no sigui amb finalitats comercials, i sempre que es reconegui l'autoria de l'obra original.
Llengua:	Anglès
Document:	Article ; recerca ; Versió publicada
Matèria:	Clinical practice guideline ; GRADE assessment ; Multiple sclerosis ; Palliative care
Publicat a:	Journal of Palliative Medicine, Vol. 23 (october 2020) , p. 1426-1443, ISSN 1557-7740

18 p, 970.4 KB

Registre creat el 2022-02-07, darrera modificació el 2026-02-12